Quick update!

[MPK0706]

First of all, sincere congratulations to all those who have posted some of their good news, especially being listed!

I am still being evaluated for a determination as to whether or not I am eligible for a transplant. I have been to Our Lady of Lourdes in Camden, NJ, Jefferson University Hospital in Philadelphia, Pa and Johns Hopkins in Baltimore, Maryland. I am finishing up my testing at Temple University hospital on December 17t (vascular, cardiology, bloodwork and surgeon). I found that each hospital has their own requirements and if you do not meet their standards you will not be considered.

I love reading all the Kidney news from everyone and especially enjoy reading nonCKD news, too! (Success in grants, etc.)

[Jayhawker]

You’ve been in my thoughts and prayers. You’ve definitely been to quite a few hospitals and transplant centers. Are you going to be listed at each of these?

I just attended another patient education session at the transplant center where I’m now listed on Fri, Dec 13th. While at that session I was told that it will be between 2-2 1/2 years before I’ll likely receive a deceased donor kidney. That was actually good news. I had initially been told about 4 years. So 2-2 1/2 years is quite a bit better.

Meanwhile, life continues on. I’m so very thankful that I’m still able to work. It really gives my life meaning and purpose aside from waiting for a transplant. So many people I’m meeting as I go through this process have not been able to continue working. I am truly fortunate!

I’ve committed myself to “training” for my transplant much as an athlete trains for a major competition: exercising daily, taking my meds, eating right, and getting to all medical appointments. My physicians are much like my health coaches...

And I’m going to start doing some volunteer work with the local chapter of the National Kidney Foundation. I’d love to have the opportunity to get involved in some political advocacy for persons with CKD. I’m convinced that many of our politicians know very little about CKD and think they have the medical needs of those with CKD met through Medicare. I’m not sure that I’ll have the opportunity to get involved at that level—but I’m exploring the option.

How are you doing aside from traveling around to hospitals and moving through testing? I’m hoping you’re getting some time to travel for pleasure and enjoyment.

Jayhawker

[Bunkin]

Wishing you all the best and praying as well😀😀