New here

[coaching]

I am Oscarine and i live in the UK. I am currently on heamodialysis.

[SharaiG_NKF Partner]

Hello Oscarine,

Welcome to the NKF Kidney Dialysis Community!

[coaching in reply to SharaiG_NKF]

Thank you

[TamekaS NKF Peer Mentor NKF Ambassador]

Welcome, I hope we are able to help with any questions you may have. Take care.

[coaching in reply to TamekaS]

thank you

[leeper]

hi oscarine, im from London but live in the u.s.a. since 1981.ive been on dialysis for 4yrs now. I have a graft.attend a center mon,wed and fri im 84yrs young and grateful for every day. I have six daughters whom are my support group. im to old for a transplant so im living my life to the fullest god bless you your family and all my dialysis family

[coaching in reply to leeper]

A great attitude is of utmost importance and that sir, you have in abundance.

Thank you for sharing. I am encouraged. God bless you too

[leeper]

it is madam not sir. blessings

[ddwebangel]

Hi Oscarine. I am new to this site and I was just scanning the people and saw your post. It was like I was reading my post. I had 2 kidney transplants and the second one is on it's way out so I am back on hemodialysis again. It will be 2 yrs in Sept. Don't know your age but I am 56 yrs old and I didn't think I would live this long. I was rejected for a third transplant from one hospital but I am trying another hospital to see if they will put me on the list. I won't give you my long story but I have a question for you. Sorry I am crying right now. How are you handling being on dialysis and all that goes with it. I'm very spiritual and have a relationship of my own with God. He is keeping me here and I think it is to help CKD people who are rejected for the transplant list. I have prayed for Him to bring me home but I wake up everyday. Depression is really bad and there are times I loose all hope. I don't like it when people say I am a strong person and have a good attitude when all it is is an act that I put on. Helping people in anyway they need makes me happy, but all that changed when I got real sick 2 yrs ago. I'm trying so hard to just accept my life and journey but it's not easy. Sorry I get carried away and will type forever. Any advise or suggestions on how you are dealing with it all would be appreciated.

Thank you for hearing me. Take care.

[coaching]

Hi ddwebangel,

Apologies for late reply. Depression is very common among renal failure patients especially if you have had or have a transplant as most of the immunosuppressive we are on cause depression. I contemplated suicide many times with my first transplant and i thought i was going insane. it's only later on whilst doing my research that learnt this. Anyway, you are in the right place here where we can all openly talk about our issues and try to help each other.

How i cope with everything is by getting busy. Doing things to take my focus on this chronic disease. for example get a new hobby every year, if you are not working get to help others by volunteering, take the focus off you. What would you like to do? Do you have something you enjoy doing, do it more. While on dialysis how do you occupy that time, do you sleep, read, watch tv? I like to write and when i don't have a fistula i crochet.

Find something to do and fit dialysis around your life not the other way round.

I sincerely hope that helps and if there's anything else please do not hesitate to ask and i ll be more than happy to share.

Oscarine