I was diagnosed with CKD : Hi I was diagnosed... - Kidney Disease

Kidney Disease

12,150 members5,076 posts

I was diagnosed with CKD

Vitraimam profile image
8 Replies

Hi I was diagnosed with CKD. I was not put on a diet but I have been exercising caution with certain foods. I hardly eat beef andOther meats only chicken.and fish and I avoid food and drinks high on potassium.

Written by
Vitraimam profile image
Vitraimam
To view profiles and participate in discussions please or .
8 Replies
orangecity41 profile image
orangecity41NKF Ambassador

Good you are trying to help yourself. Perhaps get an appointment with a Renal Dietitian to get a diet appropriate for you. I was put on an appropriate diet based on bloodwork for phosphorus, potassium, sodium, and protein. The CKD diet has helped me. Keep us posted.

WYOAnne profile image
WYOAnneNKF Ambassador

Look at NKF's website kidney.org They have diet ideas and even have some recipe's. Many on this site have seen a renal dietician and have been able to stabilize their CKD, at least for many years. Talk with your nephrologist and see about getting a referral to a renal dietician.

I am almost 25 years post-transplant and have a wonderful life

barbara55109 profile image
barbara55109

be sure to eat to your labs. We are all different.different.while I have high phphorus I have low pottasim.

RNMeemaw profile image
RNMeemaw

I agree to ask for a referral to a good dietician. Getting ideas off of the Internet is ok as long as it's a reputable company or group. A diet based on your labs is desirable as someone else mentioned here. They both are doing really well, it sounds like. Great for them!

allene7 profile image
allene7

Well that's all good to do. Do you have a question or were you simply making a statement?

Justicelover profile image
Justicelover

please keep your diet, mostly vegetables, chicken or fish, no sugar things, no flour, not refined salt, no fast food, and get as many vitamins as you can, if you can try to get vitamin shots, this for a few moths to detoxify your body and give time to heal, try to avoid dialysis but stick to your diet, if is really necessary, try to get the one at home, is less invasive dialysis than the one at the center, and one more thing, try to search for the primary cause of the kidney disease, can be high blood pressure, or diabetes, try to control those.

Blackknight1989 profile image
Blackknight1989

When I had my AKI in 1996, and left the hospital with CKD 4 eGFR around 20, I was 29…nobody in Arkansas including nephrologist knew about diet. There was no treatment other than removing the cause of the AKI, and limiting salt, red meat etc…I eat pork, chicken and have never been able to eat a vegetable (other than potatoes, corn and a salad. My last eGFR was 20, the one prior about 4 months ago 16, average last 5 years about 19. I’m 58…I have always been told by my nephrologist that once an AKI like I had and eGFR levels at 20 or below your body reacts as if you have CKD…so I know people stress diet, diet, diet but that wasn’t the case with me…my experience is that lifelong chronic disease is a very personal process, my CKD isn’t your CKD, so my advise (worth less than the time I spend conveying said advice…lol!) is to find a good nephrologist and see them consistently (I’ve seen mine every 3 months for 29 years) then follow their advice to the letter…I have been sub 20 eGFR for longer than I had normal functioning kidneys, unless l suddenly decide to gobble NSAIDS, drink alcohol, or start any habit that is renal toxic I hope to maintain eGFR with continued moderate amounts of diet modification (avoiding renal toxic things entering my body) and always advise any medical professional I’m new too or any surgeon needed for an operation I hope to live another 20 years all sub 20 eGFR…just be smart as Walt Whitman said “all things in moderation.” My best!

Blackknight1989 profile image
Blackknight1989

When I had my AKI in 1996, and left the hospital with CKD 4 eGFR around 20, I was 29…nobody in Arkansas including nephrologist knew about diet. There was no treatment other than removing the cause of the AKI, and limiting salt, red meat etc…I eat pork, chicken and have never been able to eat a vegetable (other than potatoes, corn and a salad. My last eGFR was 20, the one prior about 4 months ago 16, average last 5 years about 19. I’m 58…I have always been told by my nephrologist that once an AKI like I had and eGFR levels at 20 or below your body reacts as if you have CKD…so I know people stress diet, diet, diet but that wasn’t the case with me…my experience is that lifelong chronic disease is a very personal process, my CKD isn’t your CKD, so my advise (worth less than the time I spend conveying said advice…lol!) is to find a good nephrologist and see them consistently (I’ve seen mine every 3 months for 29 years) then follow their advice to the letter…I have been sub 20 eGFR for longer than I had normal functioning kidneys, unless l suddenly decide to gobble NSAIDS, drink alcohol, or start any habit that is renal toxic I hope to maintain eGFR with continued moderate amounts of diet modification (avoiding renal toxic things entering my body) and always advise any medical professional I’m new too or any surgeon needed for an operation I hope to live another 20 years all sub 20 eGFR…just be smart as Walt Whitman said “all things in moderation.” My best!

Not what you're looking for?

You may also like...

I was told CKD was not reversible

I was told that CKD was not reversible but that you could stop it from progressing. From reading a...

Will I be diagnosed with CKD next Friday??

Hi, I am 50 years old, unmarried and living alone. I have no friends or relatives. 2 weeks ago I...

My experience with CKD

I wrote this in a chat and then realized that maybe sharing my experience with everyone, might help...

I am confused CKD

Some time ago, just over 2 years now I had to go into hospital for just a day with a breathing...

Sjogren's Flare with CKD

Anyone have these diagnoses? I thought was managing ckd stage II okay, but with Sjogren's flare up...