I liked the book titled "Kidney Care" written by a stage 3b CKD patient who has shared his experience and has been able to control further deterioration of his CKD condition by self-care and changing his lifestyle.
This will help our entire community to believe that they can improve their CKD condition by self-care.
It is a simple process:
"Learn from doctors, research, act, listen to your body, check parameters, ideate, track, review, pivot and repaeat", is the process.
You can read it:
My dad and I fully concur with this for mum, probably because were both scientists. It's vital to track to see how things are progressing.Of course, key renal aspects need to be considered too eg the role (or not!) of protein. So I agree that CKD management includes regular research etc.
Sadly we've personally found mum's medics neither track nor educate on renal matters. But that's probably ensured we research more!
Oh prayer and luck are probably important too so we don't get complacent with my mum's generally improving results to date 🤞
It would be my guess, I don’t know this for a fact except for me personally, that most of us already do this and most likely everything you read in the book those of us at the same stage of 3 or lower who have lived with this issue for more than a New-York minute do all this “expert” bloviates about in his book. I’m glad it has been of some benefit to you but you’ll find if you suffer from the same illness for any length of time you could write the same book as the “self-care” list of actions we can do for ourselves is limited. Most of us through trial and error or a common peer find out what to do to be the best we can be at “self-care.” After all there is only so much we can do for ourselves and within a certain timespan we find out what those things are and do them for ourselves.
Finally, as just a cautionary tip, while “self-care” and “changing lifestyle” can provide benefits to most of us with this disease it isn’t an effective cure nor will it (in the long run) prevent a deterioration to stage 5 and the need for transplant IF those things were going to happen anyway. It may prolong the time before stage 5 and that may get some to the end of their lives never having to deal with stage 5 disease and transplant. I’m not saying the lifestyle changes have no benefit for I know they do as I have done them (as religiously as I can) for nearly 25 years as I have been stage 4 that long. However, they are not a fix for the disease, organs will still slowly lose effectiveness and dealing with stage 5 and all the transplant options are still an issue if you are young enough, live long enough regardless of lifestyle changes. So please incorporate lifestyle changes with the advice of your doctor and a proper medication to hopefully stop the progressiveness of the disease we suffer from as lifestyle changes alone will not suffice. Have a great day!
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