Hello!: Hello everyone! Looking forward to... - Kidney Disease

Kidney Disease

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Hello!

RedheadfromVA profile image
6 Replies

Hello everyone! Looking forward to connecting with some of you!! I’m totally lost with all of this! I have CKD Stage 3a. Very overwhelmed and not sure where to even begin. HELP! 🤣🤣

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RedheadfromVA profile image
RedheadfromVA
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6 Replies
lowraind profile image
lowraind

We have all been there. Knowledge and support help much. I found these sites to be helpful:

• Renal Support Network provides many support and advocacy services including a phone support line.

• AAKP is a comprehensive resource focusing on the quality of life for kidney patients through education, advocacy, patient engagement and the fostering of patient communities.

• National Kidney Foundation provides a portal for patients too.

Also, Mayo Clinic, Johns Hopkins Hospital, and Cleveland Clinic provide much information.

RedheadfromVA profile image
RedheadfromVA in reply to lowraind

thanks so much for the info. I need all I can get!

Bassetmommer profile image
BassetmommerNKF Ambassador

This is a good place to connect. First of all, we need more information. Do you have high blood pressure or diabetes? Have you seen a nephrologist and do they know what is causing your CKD?

RedheadfromVA profile image
RedheadfromVA in reply to Bassetmommer

I am seeing a nephrologist. I do no have diabetes. I take a low dose of Lisinopril for my blood pressure which is controlled. They do not know why I have it.

KidneyCoach profile image
KidneyCoachNKF Ambassador

Check out kidneyschool.org It is a very good place to educate oneself regarding all things kidney. Blessings

allene7 profile image
allene7

Diet is key, No one and I mean no one said a word to me about it until I was probably stage 4. Then I was told don't eat much salt and stay away from a lot of protein. Wish I had seen this site prior, but I was diagnosed 22 years ago and am not stage 5 renal failure, waiting on a transplant. Listen to your nephrologist and maybe ask for a renal dietician. Good Luck.

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