Dietary Intake

[Dana66CKD]

I have been adjusting intake and had to modify based on how I'm feeling, not just labs. Although stage 2; 81 eGFR, I don't seem to tolerate >12 grams protein/meal, 3X/day, so added 8 g snack for my 122 lbs or recommended 44 g protein/day. Before this latest dietary modification, was eating strict plant-based diet 3 meals/12g protein. (What I've been tolerating) without eliciting symptoms from CKD/CKF. My glute's started burning, couldn't sit or lay in bed on one side without feeling discomfort. I've had pressure ulcers before (decubitus ulcer) on butt, hip, so I know the sign. 36 g wasn't enough protein intake so added snack to make up difference. Next day, not so much discomfort, but I think too soon to tell. Muscle wasting is no joke, but if can't tolerate recommded intake each meal, it's a rock & hard place.

Will post again w/end result .

[orangecity41 NKF Ambassador]

Yes muscle wasting is an issue as we age. I am careful I get the maximum protein in my diet for example. Maybe a dietitian can help with modifying your diet and/or getting a menu.

[Dana66CKD in reply to orangecity41]

I have seen a "Renal" dietitian. She reviewed my labs at last year's appointment. I was eating 16g protein /meal plant based only, but though EGFR @ 81, not tolerating more than 12g/meal, so trying to eat 4 meals; 3x12g, 1x8g for total 44g/day. Added egg whites back to diet too.

[Amyngil]

Hi Dana,

You mentioned you had been plant based- has that changed for you? I am vegan- plant based and it was recommended to me that I aim for 15 proteins per meal. I know everyone is different but I was wondering if you have also beed told about there being a difference in absorption with meat vs plant protein? Was your eGFR better when you were plant based? . Figuring this stuff out is hard work. Best of luck to you. Amy

[Dana66CKD in reply to Amyngil]

Yes EGFR has been better with plant-based diet. When I started last year April, weight #163 lbs @ barely 4'11". Now weigh 120-124# so calculated protein for stage 2 is .8grams/kg weight or 14.78g/meal X3. Not tolerating 14g/meal. My ckd symptoms show up, so reduced to 11g x 4 meals. I don't want to lose anymore, especially muscle mass.

[Amyngil in reply to Dana66CKD]

have you considered asking to be referred to PT? Just for muscle building retention? Its hard to do, I understand. I am at 98 lbs I used to be 120-125. 11x4 meals sounds like a good idea - I might try that- thanks for sharing! My dietitian wants me to do 15per meal then a 5 gram snack. I often don’t feel well after eating too. Oh, I am also stage 2.

[Dana66CKD]

Not yet thought about P.T. but it's a good idea. Moderate to light exercise recommended, so have been trying to walk 3-4 days/week, 45 minutes. Weather interferes and I don't have treadmill, but Spring is coming 👏So sorry you are also having GI issues.

I have added back egg whites and will add fish too. Trying 80/20, plant-based/animal protein dietary change. Albumin low, so need to do something to stop muscle wasting.

Other persons on this forum have said they're doing 80/20, it's worth a try to see if my problem improves.🙏

[Ladyprudence]

Been following this conversation and have a couple of questions if you don't mind: (1)what is the difference between vegan based and plant based diets, and (2) are many of you following an exercise regimen? I walk or stationary bike 30-40 minutes a day, which my doc likes, and I do stretches and balance exercises some days, which make me feel more steady on my feet.

As an aside, about 2 hours after eating last night my glucose level was 127, which I know is high. I waited another hour and my level was 90. Quite a difference; does this seem reasonable? Thanks to all of you for your help.

[Dana66CKD in reply to Ladyprudence]

Your blood sugar level looks great, however, I am not diabetic, but am retired RN, so have experience with patients. Many other's on this forum can give you lots more info.Vegans, I believe, do not consume ANY animal protein or food derived from animal products (poultry, including eggs, fish, meat, fowl, dairy). All plant based foods only.

I eat avocado oil butter (spread) and many vegan foods but I'm not a vegan. I like the vegan foods that can add calories without adding additional protein to my diet so I don't exceed required intake for my needs. And your exercise routine sounds great. Keep up the good work!🙂

Hope you can find all info you seek. Good luck.

[Ladyprudence]

I appreciate that, Dana. I am trying hard, but don't want to starve myself or deprive myself of essential minerals. (?) I just slipped in the info about diabetes, but probably should stick to kidney based discussions from now on. Thanks for your explanation.

[Dana66CKD]

All the NKF ambassadors and other ckd patient's are very helpful. If you have any info you'd like to share, or questions, you'll most likely receive a quick response. I would like to try yoga also. I understand it's very good for strength, agility, etc. I have balance issues due to partial amputation of both feet, but I walk 3 days week so far, mostly without my cane 😁

[kellyscats1 in reply to Dana66CKD]

Such a wonderful positive attitude you have.. thanks so very much