Symptoms

[KGsrKGsr]

I am sleeping only 6 hours so my fatigue is all day every day. I can’t stand the feel of the shower on my hair or skin. Most food and drink has lost its taste. I am always hungry because I never feel satisfied. I am cold almost all the time. Can anyone relate?

[RoxanneKidney]

Sorry that this CKD is taking a toll on you physically and mentally. I honestly wish I had something to say to make you feel better. When i get to the point that my hair is falling out, I will do what my mom did when she had cancer...shave it all off. I"ll look like a pea head but it is what it is. I think that the part of the disease that I fear is the water retention and not being able to drink much water. It is like it slowly starves you. I really hope that this hair loss is all you are experiencing. And I am sorry that you are struggling. But you don't have to wash your hair. I hardly ever wash my hair...and that was before I had CKD.

[jodaer]

I generally sleep 8-9 hours a night and am still fatigued every day. The amount of sleep we get doesn't always equate to how fatigued we are. It comes with a chronic condition. I also have very little sense of taste or smell. I wish I could tell you something to help you but I don't have any answers but do understand what you are going through. I wish you well.

[ntsgls11]

Unfortunately this is my life with CKD. My eGFR is steady for now at 34 but my quality of life is sadly not. There is a constant array of new challenges. My sleep is measured in multiple naps of exhaustion. I have a hard time putting meals together. My itchy skin drives me crazy. My hair is thinning fast. I live alone without support. It's hard to have conversations without dragging all this ckd garbage into it and no one wants to hear it. There are times I want to stop all the dr visits, food plans, and pretend the last 8 months since my diagnosis were just a nightmare. I'm just so tired.

[Appolonia in reply to ntsgls11]

I hear you & sympathize with you, I also have hair loss, itchy skin &live alone & have no support from family members even tho they know I have CKD. They don't understand this chronic disease & I really can't blame them for being disinterested as it's not their issue. Only my one son is sympathetic to my condition. I am not looking for sympathy just some understanding & compassion. I am also just so tired of eating plant based every day.