Looking up : I started my journey when first... - Kidney Disease

Kidney Disease

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Looking up

c0wboy61 profile image
26 Replies

I started my journey when first diagnosed with CKD last October. Creatinine level of 1.86 and GFR of 39 . Finding out that some meds were probably the cause of the damage I immediately quit taking those meds . I Started a Kidney diet , kept blood pressure normal and lost weight . Well as of today my Creatinine level is 1.32 and GFR is a 58 . My point is do what you have to do and be positive . I know I was already surrendering those first few days . 6 months later I feel I can live a happy life .

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c0wboy61 profile image
c0wboy61
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26 Replies
WinJ3 profile image
WinJ3

That’s great, what meds you think was causing damage?

c0wboy61 profile image
c0wboy61 in reply to WinJ3

diclofenac and pantroprazole

shouty profile image
shouty in reply to c0wboy61

Kidneys don't like non steroidal anti inflammatory. Was told people who take Nurofen / ibrupropen regularly for long periods can be toxic to kidneys

WYOAnne profile image
WYOAnneNKF Ambassador in reply to c0wboy61

Have you talked to a nephrologist regarding the drugs you think caused your kidney issues? My nephrologist actually gave me a RX for diclofenac. Yes is is a topical NSAID, but the dose is so low. I was told the dose being low, and is rubbed on the skin -does not go into blood stream. And I also take omeprazole for over 20 years. My transplant center are the ones that started me taking omeprazole. It is like pantroprazole. I am living well with a creatinine of 0.9 over 21 years ago since my transplant in 1999.

orangecity41 profile image
orangecity41NKF Ambassador in reply to WYOAnne

I too have been taking Omeprazole for over 20 years, prescribed by gastroenterologist due to serious chronic gastro medical condition. Guess is choice Doctor has to make, treat one condition that could possibly affect another condition, but the more serious condition if not treated could cause more damage.

WYOAnne profile image
WYOAnneNKF Ambassador in reply to orangecity41

My immunosuppressant meds are the cause of my bad acid reflux. I actually take omeprazole twice a day to keep it under control. Does not effect my creatinine.Have you gotten your COVID vaccine yet? My husband and I both got Moderna on Jan. 13 and 2nd shot will be Feb 10th. We live in Wyoming, and even though really rural, seems to have their act together.

Best of luck and take care,

orangecity41 profile image
orangecity41NKF Ambassador in reply to WYOAnne

Yes my wife and I got the Covid 19 2nd shot Tuesday , Pfizer. We are relieved. We live in FL. So glad you got yours too. Best of luck to you and take care also.

SkiingSailor profile image
SkiingSailor in reply to WYOAnne

Topical medicine does definitely get into the bloodstream, that’s how its effective,

Bassetmommer profile image
BassetmommerNKF Ambassador

Yeah for Cowboy61. I remember you were pretty upset and worried. Well done and keep up the good work. It is doable.

vinadhun2 profile image
vinadhun2

Great and congratulations on your achievement. Creatinine is just one part.

Did you have any other issues with BUN;Uric acid,protein in urea etc?

c0wboy61 profile image
c0wboy61 in reply to vinadhun2

My BUN was high at the beginning 35, now its a 14. The rest all fell into the normal levels from the start.

WYOAnne profile image
WYOAnneNKF Ambassador in reply to c0wboy61

When your BUN goes above 20, it tells you that you are dehydrated. And an elevated BUN also then effects your eGFR and your creatinine. It tells me that you were not drinking enough waterYou really need to have a conversation with your ordering doctor and get his take on your October blood tests and the improvement now. Also tell him about your change in diet. I would also want to know about about your uric acid, potassium, sodium, phosphorus, and of course protein, etc. were. CKD is diagnosed over time, not from one or two blood tests. A doctor looks at an overall trend over 6-12 months. And he looks at all values in your blood and urine in order to make the diagnosis. As we age our creatinine does go up. At 59, a creatinine of 1.3 could be normal for you?#$%

Talk to your doctor.

horsie63 profile image
horsie63 in reply to WYOAnne

Not sure about the BUN and dehydration...mine is generally 23-24 and I know I'm not dehydrated as my pee is clear. The darker yellow it is the more likely you are dehydrated. An elevated BUN can also indicate your kidneys aren't working. This is my case as the damage was done due to high BP over years.

shouty profile image
shouty

Good to read such a positive post😊

SkiingSailor profile image
SkiingSailor

That’s suck great news ! What changes did you make in your diet ?

c0wboy61 profile image
c0wboy61 in reply to SkiingSailor

One thing I eat a lot of Salmon lol. Portion size is essential too.

SkiingSailor profile image
SkiingSailor in reply to c0wboy61

I’ve been avoiding salmon, which I used to love, due to its high protein content. So that’s especially interesting. I’m stage 3 and I’m in the UK so don’t have access to a renal dietician.

Amrellessy66 profile image
Amrellessy66

Good job , you are an inspiration to others

Bet117 profile image
Bet117NKF Ambassador

Great news, cOwboy61! It's all a process and you are going in the right direction!

Stay away from the sodium, red meats, NASIDS such as Advil and continue positive thoughts!

Bet

drmind profile image
drmind

Great news. Tell us about your diet and other life style changes 👍

c0wboy61 profile image
c0wboy61 in reply to drmind

Stop the salt , lower protein intake , control BP and Smile more often lol

drmind profile image
drmind in reply to c0wboy61

😀

c0wboy61 profile image
c0wboy61 in reply to c0wboy61

Oh and keep hydrated !

leo2019 profile image
leo2019

So happy to hear! Congratulations and thanks for sharing!

Sammi_n_Munk profile image
Sammi_n_Munk

Wow! Awesome stuff c0wboy61!! Kudos to you! Your success is very inspiring and lends hope to so many of us. Thank you so much for sharing this. Good news like this is always welcome with wide open arms if you ask me! Lol! Keep up the fantastic work! I’m working to do the same. All my best to you! God bless. 🙏😊👍👍✌️

Savreen1 profile image
Savreen1

Great news👍🏻 I can feel the happiness when we know we getting better. As when my baby born extreme premature due to severe preeclampsia so that time my kidney function was only 13% but after 6 months it’s bit improved and now 3 months ago was 28%. I have another blood tests on 2nd Feb🤞🤞It’s good to stay positive and happy. I really enjoy my every moment with my 6 months old baby girl❤️

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