Ckd and hives: hi, Im recently diagnosed as... - Kidney Disease

Kidney Disease

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Ckd and hives

James26h profile image
13 Replies

hi,

Im recently diagnosed as stage 5 ckd, high creatinine and protein in my urine but no other symptoms. Egfr is 11 currently.

I recently started to get hives in various places, not the kind with clear blisters or anything but just raised areas that are extremely itchy and i scratch to the point of it causing bleeding at times.

Benedryl tabs, creams and sprays dont seem to help much, but cbd ointment helps for a few hours after each time its applied but hard to apply it at work.

The more i scratch an area the more they appear. Started on the backs of my knees which went away, then on my upper arms and went away next was forearms and now upper legs.. very strange they seem to move..

Anyone have this issue?

My phosphorus level is in normal range though its on the higher side of normal so im wondering if this is causing it or do your phosphorus numbers need to be high for it to cause itchy skin? And does this typically result in raised hive like areas?

Thanks everyone

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James26h
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13 Replies
Bunkin profile image
Bunkin

I have a big problem with itchy skin! Nothing seems to help much. I do have one blister line spot. The dialysis clinic says it’s usually high phosphorus or dry skin that causes the itch. It literally drives me insane!

FlowerPreciousLover profile image
FlowerPreciousLover in reply to Bunkin

Has your dialysis clinic offered any prescriptions for help with this? I so regret this for you. Should be a big enough challenge dealing with the dialysis!

Bunkin profile image
Bunkin in reply to FlowerPreciousLover

No they’re never any help

FlowerPreciousLover profile image
FlowerPreciousLover in reply to Bunkin

I am sorry they can't prescribe some relief. Far too often, I don't get help needed from docs either. Very quick to prescribe tests, often lacking in providing answers/solutions. Maybe my expectations are too high.

I am so sorry this is happening to you. How miserable and made worse not to be finding something for real relief.

I live in a very dry area and contend with scaly, itchy skin from time to time. Even adding oils to bath water and applying heavy creams and lotions and topical solutions can't stop it entirely.

Hoping someone here can point you in a direction for relief! Have you ask your docs for help? Can they prescribe something not found otc to help?

Bassetmommer profile image
BassetmommerNKF Ambassador

HI James,

I have psoriasis. When I first got it, it presented in a way that everyone thought it was hives. It was not. It started out small too. As you doc to check your uratic levels to see if they are high. That is one indication of psoriais and can damage the kindeys.

webmd.com/skin-problems-and...

mayoclinic.org/symptoms/hig...

Darlenia profile image
Darlenia

I feel for you. My husband, who is on dialysis, takes a phosphorus binder to keep it his numbers in the normal range and prevent rashes, etc. It looks like your phosphorus is quite normal. Which makes me suspect you have a type of dry skin contact dermatitis, eczema, etc. Although I'm not a dialysis patient, I have always had severe skin conditions (raised patches over my entire body at one time) since mid-life. While kidneys are an organ with its special needs, skin is also an organ with own unique set of needs. Like you, I noticed certain oils helped my skin externally so I then assumed I could have a deficiency internally. And I took it a step further-not just applying oils externally but adding more oils to my diet (taking a couple of high quality flaxseed or evening primrose oil capsules daily - 1K mg or so). It took about 2 or 3 days for results to show...raised, itchy patches became a lot less itchy and then slowly disappeared. (Some use coconut oil for this too.) It was such a relief. So this is my "go-to". Now, I'd like to stress that I'm not a doctor. So do take it to your doctors in case you want to explore doing this. Our bodies are complicated. They'll likely shrug, as mine did. But I don't think they'll say no. Good luck.

FlowerPreciousLover profile image
FlowerPreciousLover in reply to Darlenia

Good point, Darlenia. I also added more virgin olive oil to my diet because I felt my itchy, overly dry skin needed internal help. Thanks for adding internal consumption of oils to your post. I think it may have helped my condition as well.

Darlenia profile image
Darlenia in reply to FlowerPreciousLover

You likely will do much better with oils that your skin really likes - those oils with linoleic acid. I believe olive oil may not work but others do. For example, the author of the post, mentions cbd (likely hemp) oil helping externally...and that makes sense as it has high linoleic acid, too. Skin is our largest organ, it needs to function well. I've included a link below that you can check for oils with high linoleic acid. But do check with your own doctors and specialists as well. Wishing you great health!

news-medical.net/health/Oil...

FlowerPreciousLover profile image
FlowerPreciousLover in reply to Darlenia

Yes, as our largest organ, our skin needs all of the help it can get to stay healthy.

Thanks for your informative post and link. One of the things I like best about our forums are the many tips and links to information one would never look for or read otherwise.

While olive oil is the ingested oil of preference recommended by my docs and dietitian for my health conditions, it was interesting to learn more about the percentage of linoleic acid in different oils.

What a great time to be living with so much information available. My parents grew up on a farm and their goal was to produce food for the family and for sale. They would shake their heads in wonder at all that is known now.

Darlenia profile image
Darlenia in reply to FlowerPreciousLover

Ahh...that explains our interest in subjects like this one. I grew up on a farm, too! Mother Nature's bounty is a wonderful healer too. Blessings!

TaffyTwoshoes27 profile image
TaffyTwoshoes27

Did you recently have a CT scan with contrast dye? I was told by my Neph (prior to dialysis) not to allow the dye, but when I was put on PD, he ordered a CT Scan and did not say “with” or “without” contrast and the CT attendant used the dye. A few days after that, my entire back was full of hives. It was very itchy. I had never been allergic to any medication, but my PCP prescribed a med and it relieved the itching and hives within days. My Neph said I am most likely allergic to iodine (what they use for contrast dye) now. I cannot remember the prescription, but will contact my old PCP and see if my records show what he prescribed and post it soon.

TaffyTwoshoes27 profile image
TaffyTwoshoes27

I looked on my old PCP portal. What the Physician Assistant prescribed for my hives (most probably caused by CT Scan contrast dye) was:

Medrol Dosepak 4 mg oral tabs (Methylprednisolone).

I hope this helps.

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