Polycystic Kidney Disease Stage 4 - At A Lo... - Kidney Disease

Kidney Disease

12,749 members5,201 posts

Polycystic Kidney Disease Stage 4 - At A Loss!!

Ritzy_Jewels profile image
3 Replies

My gfr today is at an all time low of 25. Over the past almost 3 months I read Lee Hull's book, watched all of James' videos dadvicetv.com and have implemented all of their advice in order to increase my gfr which was 26 at the time. At the same time I started walking casually a mile about 5 times a week, I cut out all carbs and sugar and lost 24lbs. My A1c was 6.9 and today it's 5.6. Please see other labs attached. Now what?

Sally

Written by
Ritzy_Jewels profile image
Ritzy_Jewels
To view profiles and participate in discussions please or .
3 Replies
Bassetmommer profile image
BassetmommerNKF Ambassador

HI Ritzy,

How frustrating. Remember the GFR will fluctuate and it not uncommon. It went up one point on one of the labs and yes it is down, but only two points. At the time of the draw, it could be as simple as it was earlier in the day and you were more dehydrated. I would not panic. I also suggest that you see a renal dietician who can help you plan a diet or lifestyle that takes in all the medical conditions and not go off a book. It can make a difference. But in all, you are doing fabulous. Keeping the sugar down is really important. Do other draw and try doing it later when you have had more time to have water.

SwimmerSlim profile image
SwimmerSlim

Looks good- do you have more weight to lose?

KidneyCoach profile image
KidneyCoachNKF Ambassador

Frankly and simply it appears you are doing everything possible to treat or improve your situation and doing well. IMHO your labs look amazing. Small fluctuations are expected. Don't panic. Remember they will change and likely continue downward. Prepare yourself. Counsel with doctors, join support groups, see a counselor if you need.

You ask "now what?" My response is now continue on and go live your life. Cultivates hobbies, if you love music go to some concerts, travel, write or do things that bring you joy. In essence live your life while controlling diet and lifestyle.

Consult with your doctor's and get a referral for a renal dietitian. Check out sites like PKD, AAKP, NKF, AKF, kidneyschool.org to expand your knowledge and education about kidneys, your options etc.

CONGRATULATIONS on a job well done. Polycystic Kidney Disease has a life of its own, developing at its own pace. It sounds like you've been proactive in controlling what you can for your health and life. Well done. Keep it up.

Blessings

Not what you're looking for?

You may also like...

stage 4 kidney disease

My spouse has stage 4 kidney disease with a gfr of 15. The gfr improves to 20 when she gets IV...
VirWlf profile image

Stage 3 A chronic kidney disease

One year ago I had a GFR of 60+ . I had a bad fall that tore a foot tendon in half and is...
mendobear53 profile image

polycystic kidney disease and nephrologist visit new here

hello i was diagnozed with pkd inherited from my mum at 23 years old. At that point i had no...
marie763 profile image

NOt starting dialysis at GFR 14 stage 4 kidney failure

Recently slipped into Stage 4 kidney failure GFR 14. I don't feel sick or any worse than what a 68...
cheslsa profile image

Stage 5 Kidney Disease

Hi, I am new to this community. I am in my 50s, based in California. I have been living with my...

Moderation team

See all
PattyM_NKF profile image
PattyM_NKFModerator
DorisL_NKF profile image
DorisL_NKFModerator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.