Gfr drop

[Munkie]

Ok, so i was diagnosed i believe 3yrs ago. I fluctuated from 54 to 70. Went about 2wks ago & now im at 40. im im curious or more wonderin if u also have hypertension & hypothyroidism if it will effect ur numbers more usual. Also, ive heard some say u can possibly reverse the damage & slow the process. Im wantin to know what point in this disease, will y no longer b sble to taise the numbers

[Hidden]

You cannot reverse the damage to your kidneys, but you can become proactive and take the necessary steps to slow the progression of CKD. Hypertension and Diabetes are the two leading causes of CKD.

By maintaining your blood glucose and getting your blood pressure into the normal range you are on your way.

You should ask your nephrologist for a referral to a Renal Dietitian. Bring your last years worth of lab results with you and you can develop a kidney-friendly meal plan.

I'd suggest you use drugs.com to check your medications for any that may be contraindicated for CKD. Sometimes the medication may be okay but the dosage is incorrect.

It isn't easy but you can slow it down.

[Munkie in reply to Hidden]

Yeah, i figured as much. I do plan to see a dietitian. Forgot to add i also have the peridontal disease as well. I understood that this a complicated disease & pretty much downhill. U just have to control how far u go & control the speed. I am tryin to stay healthy & take my pills when i need them. Ill admit, it feels like a rollarcoaster tryin to maintain each disease. Ill check that drug.com. thanks for ur help

[Hidden in reply to Munkie]

I've known I have had CKD for two years. My initial GFR when I heard the news was 32. Since then I've maintained a GFR of 48 for the last two years. Exercise, taking the correct medications, sticking to a kidney-friendly meal plan, and staying hydrated is what keeps me enjoying the lifestyle I had before the CKD news. Try not to think of it as a diet as it truly is a lifestyle change. Be sure to put together a Care Team of medical professionals that will give you the best advice and accept your decision as to treatment. This is not a downhill disease. I'm in my last few days of an almost seven-week trip to Colorado and New Mexico. CKD hasn't stopped me or even slowed me down. I follow the suggestions I gave you and I'm still doing the things I've always done, just a bit smarter about everything.

One final suggestion, make a spreadsheet with all of your lab values. I do this and by highlighting those numbers that are outside the "normal range" I can easily spot any trends that are beginning and bring it to my doctors' attention. Any physician that refuses to advise you about your health concerns or tells you "not to worry" should immediately become an ex-doctor on your team. Knowledge is power and the more you'll learn about CKD and your other health issues and how they affect each other it becomes possible to live the life you want without feeling that your health issues are overwhelming.

[Munkie in reply to Hidden]

So true. When i 1st found out was around the time my thyroid lvls were extremely high. It kicked me into a bad depression & i pretty much gave up. Since then, #s r still high but not as bad. I had a 78 which they usually want u at 4 & below. It killed my energy & i made it hard for me to function full speed. I use to do the insanity workout & was eatin somewhat healthy. I still struggle w my energy & barely get thru any cleanin. Im glad to here ur #s went up. Always a good thing. I agree, I try not to let this disease get the better of me. I have a trip at the end of this month near DC. Lots of walkin & sight seein. Even w all combined medical issues, i still find my strengths to get thru the days. My mother died last yr from non-cirrhosis of the liver, COPD, hypothyroidism & hypertension after a 4yr struggle. I fully agree a great medical team will help for success. Again thanks

[ricardito0108 in reply to Hidden]

I can’t find a dietitian to follow correct Diet , who can reccomend me one

[Hidden in reply to ricardito0108]

Several options. Ask your nephrologist, or contact your local hospital or call the Dialysis Center near you and ask those folks to recommend someone.

My RD works about two hours away from where I live. My first two visits were in her office. From then on I send her any significant changes via e-mail and she suggests any changes by return e-mail. It works well and saves me additional four-hour drives. Best of luck.

[maxwell03]

Hello I was diagnosed 3yrs ago mine was at 34

I also have high blood pressure because of it.

Mine just drop to 25 then 19.

I haven't found much that slowed mine down .

All I can say is watch your diet there are kidney friendly food you can go online for them and watch your alcohol and smoking if u do those.

Try to stay as health as possible.

Stay positive that's what's been helping me

[rabbit01]

As Mr Kidney says you wont be able to reverse it but you can certainly take steps to slow down the progression. When I was diagnosed I was already at 17% and was told I would be on dialysis within 3 to 6 months yet through following a kidney friendly diet I was able to increase that time period to over 4 years. Furthermore if I knew then what I know now I believe that I would be able to slow down the progression even further. Unless you are very lucky and have an exceptional health team then you need to be you own advocate in all this and read everything you can. Don't just assume (as I did) that the docs are going to sort it all out. I do wish you the best of luck.

[Munkie in reply to rabbit01]

The #s always freak me out. I think more so cuz all the other health issues can effect it. Some will even put me at a 50/50 chance. Im takin all solutions & puttin them to good use

[Hidden]

Fear can be a good thing. It can paralyze you, which isn't a good thing. Fear can also motivate you. Learn all you can about each health issue you have and the ways they interact with each other. Knowledge is power and the more you learn the more control you have over your health and the steps to take to form clear choices and take back control. Don't let it worry you so much. Use the google machine and research everything you can about each health issue. Don't rely on any one website or information source. The more you understand about your issues the sooner you will be able to relax and take charge of your health care.

You'll find a lot of knowledgeable folks here who are willing to share with you their individual stories. Each of us is different so accept the advice and use what works for you to allow you to choose the path to make it easy for you to live the lifestyle you are most comfortable with.

[Munkie]

So very true. The groups very helpful. My other support group is for Thyroid. Ive alway had horrible memory (we all do lol) & forgetfulness. This give mw much more hopein fightin thru this. I hope to nvr get in the teen w my GFR. I commend us all for not givin up the fight.