For those of you upset about the closing of the NKF for Early CKD community in the UK on Health Unlocked this is the USA version of that. We welcome anyone to visit and share and ask questions. Remember that the NKF for Early CKD is not now going to close. It will be picked up by another sponsor and renamed but I've been told that all memberships and postings will remain (just a different logo).
If anyone from the UK or elsewhere is new here, welcome and share.
Please let us know what the new name is so we dont get lost !
According to Maddie, the changes will be announced on the NKF for Early CKD site which is a UK based site within Health Unlocked. There may be other sites that are being abandoned by a UK group and she will give the new sponsors when it is all settled. No community at this time in the UK will be closed. Instead, they will just be under new sponsorship.
Kidney Disease is the USA NKF site for those with Kidney Disease and there are no changes to be made here. At least at this time.
As far as anybody getting lost, please don't worry about it. There are many folks here that post and respond to both the USA site and the UK site. I post in both but I have to offer slightly different information for the UK site because they don't have some of the same access as we do here in the US. An example, in the USA I can suggest attending a Kidney Smart class in your area. Not available in the UK. I can recommend going to kidneyschool.org/mods/ and get online courses that you can read and learn about. You can do the Kidney Smart class and add to your personal knowledge by doing the Kidney School modules in the US but in the UK you can only do Kidney School.
Thanks 😺
Thank you, Mr Kidney.
Well I certainly haven't been paying attention. All along I just thought NKF for early CKD was simply that- a forum for those that had early stage CKD. I did know that there were a lot of folks from the UK there, but I didn't realize it was meant more for those in the UK. Thanks for the update!
Don't feel bad as it took me a number of posts to realize the differences. Spelling, referencing "stones" versus pounds. The internet is still the same for research and the only difference is that I suggest Kidney School modules instead of Kidney Smart classes. Their medical system is quite a bit different but other than that the people haven't been any different than Kidney Disease. If you browse the HU Communities there are a significant number of them that originate in the UK.
Hello Mr. Kidney, I have been reading your posts about the changes on the 'NFK for Early CKD' and am surprised, as I have just received the Spring 2018 edition of their magazine 'Kidney Life', and there is no mention of any of your information. This is the first edition I have received so I cannot speak for earlier issues. It is good to know that NFK will still be operating in the UK as it is an important link for those of us with CKD. Best wishes and glad you keep such a close eye on everything on our behalf - Curleytop1.
Hi Curleytop,
I can't go into a lot of detail on the changes but I've been in touch with folks and with that and the information about the Spring edition I can surmise what may have happened. The Spring edition, even a digital one, probably had an earlier print deadline and after the issue was "put to bed" a decision was made by the sponsors of NKF UK for Early CKD to back away from the community. The post from the CEO was curt and not addressed again by the CEO.
Maddie from HU did make a statement in that community that while they would not be closing it there would be new sponsors and that all memberships and posts will continue.
Before that announcement was made I had committed to opening a thread in the Kidney Disease community sponsored by the US NKF. That's this thread. I've mentioned here that the one in the UK will continue, albeit under a different sponsor but anyone who may want to can post in both forums. I know that there are many in the USA that post to both communities. I do.
If there is another reason why the edition you received didn't mention it, I have no way of knowing, as it's just an assumption on my part. You might post in that community and ask Maddie. I'm sure that if she knows she can tell you and if she doesn't, she can find out.
Take Care.
does anyone know how to locate a plant based RD specializing in PKD?
blood in urine and CKD
Do you supposed to feel anything for CKD? And what are the symptoms?
