Help for PKD?

[jobeth]

I have PDK stage 5. My gfr is 11. I am trying to stay off of dialysis. I have started to eat a primarily fruit and vegetable raw diet. Haven't had any tests since starting. I have psudotumor serebri and a pineal cyst in my brain. I know some PKD patients also have these. Do any of you have these also? Have any of you done anything diet wise that has helped to improve your kidney function. I do not want to go on dialysis.

[worldnurse1]

Also (CKD) (4) not on dialysis and very much wanting to stay off it. Gfr 12-14. Pursuing diet with lots of fresh fruits and vegetables. Very important to minimize sodium, potassium, and phosphorus. Important to get a list of foods to choose and those to avoid for (CKD). Get it from a knowledgeable dietician, for example at the hospital or nephrologist you go to. Thanks for sharing.

[sharonlyn]

i just recently joined a facebook group...natural kidney journey...everyone who has ckd needs to join this group...i have been eating the way that is outlined in this group since the beginning of march...i have lost a considerable amount of weight...i have gotten off my blood pressure meds...losartain and hydradraline...and a diueritic lasix...i have been working on getting rid of my diabetic med from 2 times aday to 1/2 a day and sometimes not even that...i was a stage 4 ckd at 26 now i am stage ckd 3b at 41...i have gained 15 points...it is similiar to vegan but you cut out sugar...oil...salt...potatoes...tomatoes...no processed food at all...mainly a plant based diet... water and herbal teas are fine...low potassium...low phoshorus...i feel really good...the people who started this group were able to get her husband off of dialysis...and he has been off of dialysis for 14 months...there are a couple of people onsite who have accomplished that...others are raising their gfr's dramatically...all with diet...it is a great group and i am so thankful that i found them...i mean 15 points is terrific for just a month of dedication...i am working to get to stage 2 or better...now this is my experience with this way of eating...everyone is different but i found out i ckd not because my doctor told me but that i looked at my labs...if you are really serious in having better kidney function at least check out this group...

[jobeth in reply to sharonlyn]

Thanks for the info. I am now on dialysis. Have been since last May. I have not been following much of a diet as I have been having a hard time keeping my protein up. I have started taking Albutrix which is a form of protein supplement that has been put in a form your body can use without some of the bad stuff of proteins. I want to follow the diet outlined by Lee Hull in "Stopping Kidney Disease" but have a hard time cutting out everything bad. He is working on a diet guideline which should be out soon. Maybe that will help me. At the moment, I am just trying to cut out meats and breads as much as I can. My peritoneal dialysis is not pulling out enough toxins, so I need to concentrate on not putting them in my system. Any eating suggestions on how I can get my protein with other sources that is not too time consuming to prepare?