For the moment it will keep your bladder ,kidneys but not the CFS /fibro & trigger points [ weaker areas & organs] clear !
There needs to be more indepth patient orientated research which has been deliberately not happening especially with vascular dementia & utis, e coli, lipo-lymphoedema primary .I suspect that with most Urologists, having specialised in the male Cancers or the gynae pregnant women we have another Metoo situation as there is a dictat that single solo 65+ female get no investigation [ cultures] if complex [ symptoms urosepsis[ pylonephritus] even though they may be about to go dolally as effecting their brains .Because of this organised negligence in NHS allowed by the law & organised by ? males in Treasury ? they gain if we get dementia/alzheimerso so excrutiarting loans taken out for rennovation & Brexit ? PS who oversees that the treasury is funding correctly not discriminating or has it been given free reign with no accountability ?
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skybluepink
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Hello, I've just joined this site and note that you've posted several things which outline your health problems.
I'm so sorry that you have so many problems which have a disastrous effect on your life.
What is obvious and what you might not like me saying, is that you, and your family, appear to have a very poor relationship with the NHS, especially GPs.
Although the NHS is not without flaw and GPs aren't perfect, it seems to me that a big part of the problem is your responsibility.
I can understand your anger, bitterness and feelings of being misunderstood. That's not your fault. It doesn't help you though to direct your anger at people who may genuinely be trying to help you.
Doctors are human and you don't get the best from them if you don't give them your best.
As for misunderstanding, there seems there's a lot ofvthat between you and the NHS.
You may be expecting too much from doctors. No doctor can know everything and General Practitioners particularly don't have an in depth knowledge of anything. That is a specialist's role.
One of the problems is that doctors are very well educated and in effect speak a different language than people who are less educated or aren't medically educated.
It's easy to see then why misunderstanding occurs. Of course the doctor should make some effort to understand you. On the other hand it would really help you to do two things. 1 don't assume that you HAVE understood what the doctors saying. If your immediate reaction is to get insulted or angry, ask them to explain or clarify and do this respectfully.
2 try to say things in a way which helps them to understand you. What you write on this site, for whatever the reason, is barely understandable.
As an example, FND is a "functional" disorder, to the doctor this means that there is no identifiable physical cause. This is a fact. If you think a doctor has said that it's a mental health problem, then there's probably some truth in that. It's not intended as the insult you seem to take it for. It also doesn't mean there's no treatment.
Understandably when people are in poor health, frustrated, frightened or angry, NHS people are easy targets for this. They get a lot of undeserved abuse. If you, or your family, are abusive they have the right to refuse you.
I suggest as you seem to be having difficulty communicating with NHS staff who could be of service to you, that you find and contact a local advocacy service who could act as a go between.
My Late Father was an NHS pharmacist & carer for Late Mother with such severe dementia no hospital dept wanted to know after diagnosing with locum Specialist too late ? I am also dyspraxic at MA level & one of the symptoms of deliberately neglected utis is urosepsis effecting the brain ?? !!! My appts 3 weekly for 30 yrs by Prof because of disability - neurogenic bladder & primary lymphoedema [ no provision] .These appt were not transferred when I moved house or directed to where specialists advised RNOH .The reason I am on the case is I know alive now because of it when kidneys scarred age 7 & one of first on penicillin, at birth something is not quite right when told costing too much money no testing or referring or prescribing antibiotics after cutting hospital monitoring appts .This was after Dr s had referred saying not taught about disability .It is the Drs ,who have a confict of interest allowing the LAstheir employers to hold our funds maladminstrating them , rather than Hospital specialists So using their lack of specialism & other agenda on CCGs. to operate unethically causing neglect & further disability.
Hello again, Again I recognise you have had some bad experiences and have a whole raft of reasons for having no trust in the NHS.
I note you say you suffer dyspraxia. I confess, I'm not particularly knowledgeable about this, but it does suggest a reason for what you write being so difficult to make any sense of.
I believe you may be quite well educated, but suspect very disorganised, as reflected in your writing. This is an observation and isn't intended as a criticism.
I apologise for being blunt, but despite the apparently poor service you've received from the Health and Social services, what else have you got?
For most people, the NHS is overwhelmingly good, recognised by the World Health Organisation as one of the best services in the world.
If there are flaws in it then I believe it's better to contribute towards improving things.
If you have specific complaints about particular events then there are mechanisms for submitting your complaints. Well expressed complaints will be taken seriously and may make a difference, leading to improvements for all.
I feel compelled to point out that just reeling out a whole list of faults isn't going to be effective in achieving anything. Personally, although I think of myself as having some compassion, my initial reaction to what you say is unsympathetic. Although you are perhaps deserving of sympathy.
I imagine, although it may be very wrong, that you may have become labelled negatively by the services you have to rely and this won't benefit you.
Again, I can suggest you contact an advocacy service that could at least support you and help you to articulate your concerns.
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