exit stage left

I also have my grandkids coming to visit in January who I haven't seen in 3 years. I should be excited for their arrival but instead I am panicking......they are staying for 10 days, I will be walking the halls, crying and moaning, can't go anywhere with them.......I think I might be better off out of the picture so Chris can enjoy the time with his grandkids. I hate my life, I hate that there are blockages to medication that could save me, my life is hell.

[everlife]

Sorry to hear you are in a lot of pain. I hope you can manage to see your grandchildren. I have a lot of pain at night try to keep going during the day. Good luck to you.

[brenanddave]

I'm hearing you! I am sending you big hugs and healing I know the feeling of just coping without having to deal with anything else i have had to put my family off more than once My suggestion is to be honest with them all about your condition and that you are excited that they are coming to stay but that you will be needing their help and understanding You are only human, xxx

[Karjade]

I am feeling just like you - in pain 24/7 and this morning I was crying to my husband that I just can’t live like this anymore. I am really trying to keep positive and as much as I hate taking medication I know that I just have no choice now if I want a quality of life. Recently I was diagnosed with Anti-MAG peripheral neuropathy which is a rare autoimmune neuropathy and I have an appointment to see a Neurologist at John Radcliffe, Oxford but not until next March! Hopefully he can help me as so far nobody else has heard of it. Try to keep positive and just do what you can do and try not feel guilty for what you can’t do xxx

[mariootsi]

Sending prayers and hugs. Do what you can and explain your issues. People really do understand when we have limitations. Therapy may also help you cope. I have a psychologist helping me deal with my issues. An antidepressant may help too.