Neoplastic sensory neuropathy

[Cloe]

Hi, I was looking for a group to see and hear from others have neoplastic sensory neuropathy. My nephew was diagnosed last year and wanted to hear others experiences. He’s under UCL and has a good team looking after him. We’re still waiting for the cause to show itself so meanwhile he’s having 3 monthly PET/MRI/CT scans and on a treatment plan of steroids. He’s coped amazingly however is struggling mentally with the waiting game, reducing on the steroids seems to have knocked him this week as some of his symptoms had slightly improved but now appear to be going back. Thank you Cloe