I was diagnosed with Chiari 1 in December 2018, a 3 - 4mm drop, and have all the symptoms as well as terrible shoulder, neck and head pain. I’m 27 and have had the symptoms for 6 years. However, the specialist told me that because I DIDNT have impeded CSF flow or crowding, that there was no way that any of my symptoms and pain could be caused by my 3 - 4mm drop or confirmed Chiari Malformation 1 diagnosis. I don’t believe this is possible and just wanted to know if anyone else has had this experience or problem.
I am also looking for any proof from medical or scientific journals or doctors (anything written from an official authentic source) ,that says you don’t need to have impeded CSF flow or crowding to have the symptoms of Chiari 1 if diagnosed.
Lastly has anyone had surgery who has a drop of 3mm, 4mm or 5mm ? As a doctor told me the surgery criteria is 6mm and or has anyone helped you in any other way?
Thanks for reading,