Hello, I am new here: Hi, I'm new here having... - Myositis UK

Myositis UK

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Hello, I am new here

Italy27 profile image
3 Replies

Hi, I'm new here having been diagnosed with polymyositis just before Christmas. I experienced muscle weakness and inflammation from early 2021 until being admitted into hospital, when at that point I had difficulty walking, getting dressed, climbing stairs and getting out of a chair. Have had a great hospital team who have gone out of their way to find a diagnosis and start recovery. I would definately recommend keeping a positive attitude. Nice to meet you.

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Italy27
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Baileyw06 profile image
Baileyw06

I just got diagnosed with Myositis and don’t know which one I have, will find out tomorrow.How are they treating yours?

Italy27 profile image
Italy27 in reply toBaileyw06

Hope all went well today. I was treated by being admitted into hospital and the team assessing what was wrong and working back to a diagnosis. This included, MRI's, gastroscopies, CT's, PET scan, muscle biopsy, ultrasounds, barium swallows and other tests. I am now on a fair bit of medication and undergoing physio and regular blood tests. Good luck.

Theironfacade profile image
Theironfacade in reply toItaly27

Welcome to the group,. I am pleased you have a good medical team working with you. Being a rare condition it can be difficult getting a diagnosis . I hope you begin to see improvement soon

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