New member

[Daisychain2501]

Good morning. I am new here having recently been diagnosed with Dermatomyositis.

Feeling a little bit scared and uncertain of the future!

[angelsue]

Hi, I was there about 3-4 years ago. I understand there are different types, which is yours or what are the symptoms ?. I am happy to share my experience or perhaps just ask questions.

[Daisychain2501 in reply to angelsue]

Thank you for your reply. Sorry I haven’t replied sooner, I have been in a bit of a funk and not really able to digest information. I am doing ok comparatively but just paranoid about every new ache, potential symptom. I guess you just get more used to things as time goes by. It’s nice to connect with people in the same or similar boat.

[angelsue in reply to Daisychain2501]

Hi, I think this is a very tricky/unpredictable journey which is a challenge for the patient and the family. There are no quick answers . If I can help in any way just give me a shout.

Regards

[hopegalore20]

Hi Daisychain2501, welcome to the HealthUnlocked website.

You will be able to chat with lots of people who have gone through what you are experiencing just now. Everyone is on hand to give their best advice.

Like yourself, I was diagnosed with Dermatomyositis about 5 years & 8 months ago.

My illness is still very much active. In some cases, you will find that if the person responds to the right treatment, it may go into remission, thus letting you live a normal life.

If you have a good GP, Dermatologist & in some cases Neurologist, half the battle is one.

Each one of these professionals will need to work as a team to find the very best medication for your condition. Although we have the same disease, everyone has varied symptoms and can react differently to the medications they try out on us.

So please don’t give up, you will find things will work out on the end.

I wish you the best of luck.

Please keep me posted on your journey.

👍

[Daisychain2501 in reply to hopegalore20]

Hi, thank you for your reply. It’s been hard getting my head around the diagnosis. Like so many others, it’s potentially not what was envisaged for the future. I am an anxious person anyway and this has really tipped me. I have got great support from my GP.

It is nice to read about other people’s experiences and know that I am not alone. X

[hopegalore20]

Hi Daisychain2501, it’s so true, we cannot see the future ahead, and in reality, that’s a good thing!

With this type of illness, it is best to take each day as it comes along, don’t stress, as we all know, stress is a huge contributor to a lot of health problems.

Good to hear that you have a good GP who will listen.

There are also a lot of people on this website that will reach out to support you, never feel alone.

Please keep us posted on how you are doing and what medications work well for you.

Stay Safe x