I’ve been back and forth to hospital since August presenting with muscle wasting. Have seen rheumatology, neurology and oncology. Latest thinking is that my polymyositis is being caused by a thyroid issue. I’m waiting to see which department at the hospital will take over my care. My CK level is currently 8000 and I have a lot of muscle wasting in my leg and core. Stairs are really difficult as is the effort needed to keep myself upright. My swallowing has also been affected and one arm also is weaker. EMG tests showed my nerves are ok. Waiting for muscle biopsy results. Wondering what the next steps might be and also how easy it will be to get muscle strength back, especially with swallowing. I’m 53 and not currently on any medication.