Hello 👋🏿

[RessieBare02]

Hi everyone! My name is Taress (rhymes with caress). I was diagnosed with Multiple Sclerosis 6 months ago. It's been a long time coming. I have had symptoms of it, on and off, since 2005. I am one of three of my family members whose been diagnosed with it. My main symptoms are fatigue, dizziness, neuropathy in my arms, hands, legs and feet, cognitive issues and nausea. Currently, I'm on Kesimpta for my treatment. I'm here looking for support and connection 💗

[falalalala]

Welcome!😀

[RessieBare02 in reply to falalalala]

Thank you!!

[carolek572 CommunityAmbassador]

Welcome to the forum, RessieBare02 . We are all here to support each other. You can look ar mymsaa.org for resources on managing your ‘ms’. I look forward to hearing more from you.

[RessieBare02]

Thank you! 💞 😊

[Helpmeup]

Hi RessieBare02, and welcome! You found a great group for support and information. We are here for you. Glad you found us.🙂

[kycmary]

Welcome to your new club! We love ya & just met ya. een there & done it most likely will do it a few more times!

[RessieBare02 in reply to kycmary]

Thank you! 💞

[Xvettech]

hello & welcome :). I am on kesimpta too

[RessieBare02 in reply to Xvettech]

Awesome 😁

[shamoneldy]

Welcome RessieBare02! how is Kesimpta working for you so far?

[RessieBare02 in reply to shamoneldy]

I like Kesimpta! For the most part, my symptoms are not as intense, although it's heating up where I am so I'm starting to get more fatigued lately. I haven't had any major side effects from it and I like the fact I only need to take it once a month

[shamoneldy in reply to RessieBare02]

Thats cool im glad its helping. I am also living somewhere its hot so I can relate.

[AquaZumbaFan]

welcome! This is kind of a club that nobody wants to belong to, but if you have to, it’s not such a bad place at all! Very nice people on this forum. What I found it’s amazing to be able to throw something out there, but you can’t even tell your spouse sometimes because they don’t get it completely because they don’t have it. My mother and my older sister both had MS… So I’ve been living with beast with my mom pretty much since I was born..

[RessieBare02 in reply to AquaZumbaFan]

Yeah, my aunt and my late grandmother were diagnosed with MS. So, when I started having symptoms of it, I realized that I needed to be tested for it. I'm grateful that we have these spaces because not everyone is going to get it and understand what we go through on a daily basis.

[AquaZumbaFan in reply to RessieBare02]

Absolutely! For the first time really in my life (and I’m pretty old lol) that I am in a group where people understand the daily stuff! I was in a chat the other day when it just came up with how frustrating it was to be getting ready to go someplace and know how much time it normally takes to get yourself ready and then having to allow time in addition to that I have to sit down and take a rest before I can go anywhere… Lol. Somebody put a positive spin on it and just said well let’s just be grateful that we still can get ourselves ready and that we actually have someplace to go! No matter how crazy things get I know they can always be worse! I am counting my blessings every day with all the things that are still going right!

[Biggums]

Greetings RessieBare02. Sorry about the vertigo because that part sucks. Hopefully it's getting less intense. The dizziness can bring balance problems. Hopefully the Kesimpta is the right therapy. What type of MS do you have? Things are different for you. First you have to gauge your stamina. Try not to wipe yourself out. Downtime sucks(you get so tired all you can do is sleep). This is the time you pay attention to what limitations you have. If you have to rest at times. It's a lot, but this is on the job training.

[RessieBare02 in reply to Biggums]

I have Relapsing Remitting MS. I've learned to pace myself, especially on the days I do more energy. Just because I feel "normal" doesn't mean I can move about like I used to. I really have to listen to my body and remember I have limitations now.

[Biggums in reply to RessieBare02]

Greetings RessieBare02. Those are good signs. Don't know how you react to drastic temperature change but take notice. Extreme heat can make you feel like a cooked noodle-weak. Cold can make you stiff. Try to avoid standing too fast or looking down too fast. Just make sure you have your bearings when you stand. Some days that's essential. Some of this you may have figured out.

[Axel_4233]

Good Morning RessieBare02! I too was diagnosed with MS in 2012. I had all the symptoms you have,but as time goes by my symptoms comes and goes. My last relapsed was muscle spasms and pain due to uti's. I have to be careful not to get an infection. Hopefully you have the right medication, love and support from your family and friends. I'm here to lean on if you need it. Peace and love to you! 🥰🙏🏾♥️

[RessieBare02 in reply to Axel_4233]

Thank you Axel!! 💗

[Peruzzot]

Welcome to the group!

[RessieBare02 in reply to Peruzzot]

Thank you!

[RessieBare02 in reply to Peruzzot]

Thank you!

[CatsandCars]

Hi, RessieBare02! I'm happy that you found us. I look forward to hearing more from you. 😄

[RessieBare02 in reply to CatsandCars]

Thank you!

[bxrmom]

Welcome to this wonderful group RessieBare02 , sorry for the reason. This is a wonderful group to ask questions, vent, celebrate, and more. Looking forward to getting to know you.

[RessieBare02 in reply to bxrmom]

Thank you!

[MSFlea]

Hello, and welcome to the community! I was diagnosed in Feb of this year, and am also on Kesimpta. Looking forward to hearing more from you 🧡

[Jer29-11]

Hi and welcome!

[RessieBare02]

Thank you!!