My neurologist has ordered this blood test for me. Octave’s MS disease activity (MSDA) test measures levels of 18 proteins in the blood. It’s a specialized test so I need to check if it’s covered by Medicare and my Advantage plan. MS goes in so many different directions. I just had vascular bypass surgery in my right leg. What should have been 3 days max in the hospital turned into 6 days plus 2 weeks at a rehab facility. Just had my 2 month follow up. Blood flow is greatly improved but I can’t walk even with a walker…not that I was able to before but I was hopeful.
Has anyone had this test before? Did it tell you anything you didn’t already know?
The above MS articles were so helpful! I think it would have been a good idea for the vascular surgeon to maybe talk to my neurologist? Ya think?
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MaryAZ
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Sorry for your extra hospitalization and stint in rehab, and also not being able to walk. That's so disappointing! It does indeed sound like your doctors should have spoken. Interesting info! I wish you the best.
I'm not commenting on the Octave blood test as that may well prove to be quite useful diagnostically. However, I'd ignore anything that's on the MyMSTeam website - the information they have in their articles is sooooo hit and miss - and so many articles are cobbled together with both a little of of "truth" and and lot of rubbish. They also like to include links to studies - just to show that they can - but rarely ever actually demonstrate properly the relevance of a linked item to the subject matter - and some of their linked info is quite irrelevant to the subject of their articles. The article on the link you've provided is still mentioning CCSVI as if it is a real and scientifically proven problem - when in fact it was pretty well totally debunked several years ago.
Sadly, one of the ripple effects of the poor standard of info on the MyMS Team website is that people read and perpetuate the misinformation. For example, in the article on circulation someone is quoted as saying “I’ve been referred to get a circulation test for my right foot because my toenails keep falling off for no reason,” one MyMSTeam member wrote. “It’s the foot that’s got nerve damage because of the MS.” MS is a diseaseas of the central nervous system and does not cause nerve damage in peripheral areas such as hands and feet - any actual peripheral nerve damage in those parts of the body would have another cause. It doesn't mean that MS does not alter sensation in the extremities, but MS itself does not cause peripheral nerve damage. So, someone else who has similar problems and read the MyMSTeam article will now start to assume that their problems are caused by their MS, and will go on to repeat the misinformation to others. Too often I see people claiming to have peripheral nerve damage caused by their MS - but they don't actually know what peripheral nerve damage is.
Thank you all for your comments. I think we all can agree that MS is a GOK disease … God only knows…disease. We wish it had a defined path but it’s definitely different for all of us. Every day is a new adventure.
I´m sorry your situation. I have been reading an article that there is a new Ocrevus twice a year , an inyection of 10 minutes. Have you listened this ?
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