New to the community

[irishmom66]

Hello. I was diagnosed with MS in Nov 2008. I was 42 years old then which means I'm 52 now. But I feel like I'm 70. I stopped working in 2010. I wanted to keep going but my cognitive issues had other plans for me. Be careful what you wish for, people always say they can't wait til they retire. I wish I could go back to work. Anyway, I'm happy that I've joined this group.

[Kenu]

Welcome to our crazy 😜 group of MSers 😁This is a great place to vent and find out lots of information about MS from people who care and understand. I was diagnosed twenty five years ago and was able to work until three years ago when I was diagnosed with stage four throat cancer. Like you I wish I was still able to work as I enjoyed my job. Oh well life goes on and I have adapted, but do miss the money. 🙏🐾 Ken

[Wizardsmom]

Hi irishmom66 , I'm glad you joined as well! I had to quit my job too, at age 44, when I was diagnosed. Being on disability is no fun and it is very isolating. I feel so alone sometimes and feel that no one understands me. I think a lot of us feel this way at times. We just need to stick together, hang in there!

[Fancy1959]

Good afternoon Irishmom66,it's Fancy1959. I would like to officially welcome you to this awesome chat room. We promise to provide you with a safe place to come and ask questions, voice concerns, or simply speak to others who truly understand what you are going through.

I was a very very active 53 year old when MS knocked me down. I felt like I was typically about 35 to 40 and once MS hit I went to feeling like I too was 70 overnight so I understand how you feel. I would also go back to work in a heartbeat if I was able to. It's not that I missed the work I did so much as I miss being able to work and having the health needed to work full time.

We too are glad you have found us in I personally look forward to speaking to you in the near future. Until we speak again please take care and remember together we are stronger! Fancy.

[CraigS]

There are so many of us wearing the same shoes. “Early retirement “ sounds good until you find out that you can’t do the things you want. I try very hard to do the projects that I have on my bucket list, it just takes a hell of a lot longer now. That’s difficult for someone like me that could do so much before. “Life’s a box of chocolates “ only this box has the ones that no one wants to eat. You’re in a good place to talk about the triumphs and tragedies.

[Peruzzot in reply to CraigS]

I love that analogy. The chocolates that no one wants.

[lbenmaor]

Welcome! We are so happy to have you. It's a great way to ask ?s and

learn about things that help MS.

Leslie

[greaterexp]

We are happy you found us. It’s so helpful to know that people here truly understand what we go through physically and mentally.

I hope you receive lots of support here.

[Peruzzot]

Welcome to the group. I'm still working. I'm a little over 8 years towards full retirement from my civilian job and was forced to retire from the Army Reserve after a little over 30 years of service. So the joke is on MS with that. But with the cognitive and short-term and working memory issues I might not make it to full retirement on the civilian side. Only time will tell.

[ssdw1958]

Hi irishmom66 I’m ssdw1958 you are so true watch what you wish for. I hope you are having a good day and For those of you out there who still are working I know you have to take days off for doctors appointments but you need to take even if it’s one day take a day off and do something different examples go to the beach, to the movies do something for your self. I wish I had done that. I was asked to leave my job early. So I am at home all day. So take it from me have some FUN for your self.

[Diva1976]

It’s funny what you mention about age. I have always felt older base on what this body was doing. In my thirties before being diagnosed I would say I feel every bit of 50 to 60. Than we bought a wii and it does this criteria thing. Well after going through the different things of what it told me to do. The wii concluded that my body fell in the range of what I had been feeling. It validated the feeling of this body that is known to be MS. It cracks me up now! I just laugh and say I knew I wasn’t crazy! Just didn’t know what was wrong!

[ssdw1958]

You are so true I remember before I was diagnosed I did say to the people I worked with I would ask them if they were worn out and they would say yes. You have to realize I worked in a preschool with 3,4,5 year olds now. But as the disease started to show its self I knew there was something going on with my body. What I’m trying to say this disease is nasty it will slowly come up an d bite you so fast it can and will knock you out.

But what got me is my doctor had know clew what was going on.