What did I miss???: Hi to all. Sorry I... - My MSAA Community

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What did I miss???

Irishgirl76 profile image
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Hi to all. Sorry I missed tonight sharing. Anyway to get summaries? Went to pain meds and discussed Baclafin pump and pain meds. Nervous since I deal with multiple symptoms. Spasticity, bowel and bladder, neuropathy? Foot pain. I try to research. Not good taking just anything for pain.

Neurpathic neuropathy? Feet,legs, calfs sharp pins and needles pain.

I read how important to be positive, informed. Thanks 🙏

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Irishgirl76 profile image
Irishgirl76
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CatsandCars profile image
CatsandCars

Hi, there. I'm not sure what sharing it is that you missed. I know there was an MS and Intimacy webinar that MSAA did a couple of nights ago, was that what you're referring to? If so, they will put it in the MSAA Video Library in the coming weeks.

Are you considering a baclofen pump? I have one, and it works pretty well for the lower part of your body, but not the rest of it. I'm too sensitive to the intrathecal baclofen, so my legs feel weak, and so the pump is at a very low setting. I'm not sorry, though, because I don't have to take as much oral baclofen, which means I'm not nearly as sleepy. If you have any questions about the baclofen pump, I will try to answer them for you.

Irishgirl76 profile image
Irishgirl76 in reply to CatsandCars

Yes. Thank you 😊

CatsandCars profile image
CatsandCars in reply to Irishgirl76

You're welcome. 😊

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