The Temperature “Flip Flop.”: Hello... - My MSAA Community

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The Temperature “Flip Flop.”

stepsforNeeC profile image
43 Replies

Hello Community Fam, I have a question for anyone experiencing the winter chill. PA is inconsistent with temperatures right now. We melted away the snow from last week; Saturday 55 degrees, this upcoming weekend chilly with temps in the morning around 27 degrees! One day I’m fine; next few days feel like a “flare is brewing.” I think my tolerance to Naproxen and/or Flexeril have reached its peak of effectiveness. It’s been a long time since I had an infusion tx. Anyone else feeling yuck from the weather? Please share if you don’t mind. Blessings and Peace ☮️. NeeC

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stepsforNeeC
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43 Replies
falalalala profile image
falalalala

I like cooler weather and it doesn't get to me.

I used to love winter walks with my husband but he refused to go out when it hit 11 below zero.Big baby.😅😂

At 5 below,I was still comfortable. Dressing in layers, with toe warmers in one's boots and a face mask work well.

I looked like a complete freak😂 but it is worth it because it's so quiet and peaceful and one can see animals easier. The photo is where we would walk. The mood lifter for me is that I got out in it.

The heat and humidity can knock me out but the sunshine is definitely a mood lifter.

snow
stepsforNeeC profile image
stepsforNeeC in reply tofalalalala

Beautiful ❤️I would say the winter is better for me than the summer, it’s the extreme temperature changes that are triggering my discomfort. I love coats and boots!

falalalala profile image
falalalala in reply tostepsforNeeC

There are some here that are affected by it for sure.

Summer used to be my favorite but now I have to do things earlier in the day to get through it.

I can see how extreme temp changes might get to someone though. I hope you find relief.

stepsforNeeC profile image
stepsforNeeC in reply tofalalalala

Thank you my friend!😊

Kenu profile image
Kenu in reply tostepsforNeeC

I have found it to be the barometer change that affects my ms. Sudden change from hot to cold and vice versa misses me up 🤬.

stepsforNeeC profile image
stepsforNeeC in reply toKenu

Yes, me too!

kdali profile image
kdali

I would dress as if you're already having issues, and take off layers if you get too hot. I've spent a lot of time in snow gear this fall/winter (but no snow 😭).

stepsforNeeC profile image
stepsforNeeC in reply tokdali

Good idea- thank you 😊

NorasMom profile image
NorasMom

Flip-flopping weather is the worst. I've been dealing with it, too; mostly whining about it to anyone who'll listen. 😁 Just give me a steady temperature. I'll adapt and be fine. But don't let me prop my feet up on the back porch one day, just enjoying the sunshine and warm weather, and then slam me with minus-degree wind chills and snow the next! That's just so wrong. I'm cranky, so I've just been doing whatever I feel like. It involves a lot of naps and chocolate.

goatgal profile image
goatgal

You call it flip flop weather, I call it yoyo, and all of us -- humans, wild critters, and plants -- suffer with these extreme temperature swings. Here in Central VA, temps last Saturday went into the 70s, and last night it was freezing again. It is hard to adjust. Last week, bees were out in search of food, tulips and daffodils are emerging, and yet spring won't be here for another five weeks or so.

AquaZumbaFan profile image
AquaZumbaFan in reply togoatgal

I am with you goatgal.. I went to “ town” (Richmond) with my daughter and the pups on Friday and the car thermometer said 78.. we had just had 4-5 inches of snow the week before- although I was loving having a walk with the pups.. we ran major errands and I got overdone with the heat and too much activity.. I can’t stand myself when I get so cranky.. luckily we finally finished and I found my sense of humor.. I blamed it on the full moon

stepsforNeeC profile image
stepsforNeeC in reply togoatgal

It’s a challenge!

ahrogers profile image
ahrogers

I have enjoyed a few warmer days here and there. Some nights didn't drop below 40 degrees either so not as cold heading to work in the morning. I like the times of year with fluctuating temperatures. I like variety. The problem is I don't function properly in too cold or too hot. The malfunction resolves as soon as my body temp returns to normal though, no lasting flare of symptoms. I am looking forward to spring and it's fluctuating temps too 😁

stepsforNeeC profile image
stepsforNeeC in reply toahrogers

😊

stepsforNeeC profile image
stepsforNeeC in reply toahrogers

Today is chilly and the weekend burrrrr❄️

CatsandCars profile image
CatsandCars

It's not just you. My neurologist even said that when there are a lot of changes in the weather (it was spring in this case) that they see a lot of patients with problems. I seem to remember reading an article that hypothesized that changing barometric pressure can affect the brain.

stepsforNeeC profile image
stepsforNeeC in reply toCatsandCars

That theory sounds applicable! I’m feeling a little better, made a healthy smoothie and exercising moderately to jump start my energy level. Thanks you and Peace

CatsandCars profile image
CatsandCars in reply tostepsforNeeC

I hope you feel better. 😊

whwiechm profile image
whwiechm

Heat bothers me much more than cold. I have a great snowblower that I can no longer usebecause of my MS so I have been trying to sell it for three years but we have gotten very little snow so who needs a snowblower

CatsandCars profile image
CatsandCars in reply towhwiechm

Hopefully, when you do finally get a good snowstorm, somebody will see the value of it and buy it! 😅

stepsforNeeC profile image
stepsforNeeC in reply towhwiechm

Well, let’s see if the Groundhog sees his shadow on Friday 😊I let you know the snow ⛄️ predictions for PA. Blessings NeeC

whwiechm profile image
whwiechm in reply tostepsforNeeC

I think it's El Nino.

stepsforNeeC profile image
stepsforNeeC in reply towhwiechm

You might be right 😊

mrsmike9 profile image
mrsmike9

The crazy weather does affect me. We keep our house temp at 67 degrees so if I stay in, it's not as bad.

stepsforNeeC profile image
stepsforNeeC in reply tomrsmike9

Yes, I love the house nice and comfy!

mrsmike9 profile image
mrsmike9 in reply tostepsforNeeC

Before MS, that would have been way too cool for me! Now, it's perfect.

Tazmanian profile image
Tazmanian in reply tomrsmike9

I like 67 and it works for my wife

stepsforNeeC profile image
stepsforNeeC in reply toTazmanian

That’s a good temp!

Goldilockssearching profile image
Goldilockssearching

yes. It is horrible! Pick a temp and stay there please

stepsforNeeC profile image
stepsforNeeC in reply toGoldilockssearching

Yes please!

bxrmom profile image
bxrmom

I can adjust to most temp if they are consistant but the yoyo effect is hard. Today, we had about an inch of snow, supposed to get rain/snow later. Ugh..can't wait till the temps are back in the 70s and we don't need to have the heat (or ac yet for that matter)!

stepsforNeeC profile image
stepsforNeeC in reply tobxrmom

It’s chilly here too. I’m snuggled up with a “throw “ watching Lifetime movies 😊

bxrmom profile image
bxrmom in reply tostepsforNeeC

I finished up a fundraiser for a dog that was adopted a few years ago from the dog rescue I volunteer with, finished thank you cards (my handwriting is so bad sometimes), and calling the adopter to give them the good news on the fundraiser (raised more than the goal)!

stepsforNeeC profile image
stepsforNeeC in reply tobxrmom

That’s wonderful- I know that’s a great feeling! Awesome ❤️😊

bxrmom profile image
bxrmom in reply tostepsforNeeC

Yes, it feels so good!

KipAngCan profile image
KipAngCan

Hi!! I’m in PA too and my issue is I get extra stiff but I did notice I had heat issues while wearing a sweater one day. That adds fun to the mix!! I do much better when it’s cooler but apparently the frigid cold isn’t for me. It seems like there are only a few brief stretches that I’m okay with the weather. I loved Summer but that’s at an end now. 😔

stepsforNeeC profile image
stepsforNeeC in reply toKipAngCan

Yes, spring seems to be the best for me.

Hest19 profile image
Hest19

I’m in Florida but we too have had big fluctuations in temps and it seems my body has harder and harder times adjusting. I used to think it was just heat that bothered me but the cold does too, just in a different way.

stepsforNeeC profile image
stepsforNeeC in reply toHest19

Yes it does! I have had gloves on and on an extremely cold day, experienced the “tingles.” Spring is the happy medium ❤️😊. Blessings and Peace.

Hest19 profile image
Hest19

I can so relate to those “tingles”. My fingers “tingle” til they go numb in mornings just after drinking water, before coffee. And my house is 69 degrees right now. I run hands under hot water for help until my time to sit down with coffee and often (like right now) with a heating throw. Tis not life threatening I know but definitely a bother! Blessings to you ❤️ 🤗 Exercise will help later as soon as I get motivated enough to go for it, or a hot shower… have a great day!

stepsforNeeC profile image
stepsforNeeC in reply toHest19

Have a beautiful day Hest19❤️😊 Yesterday was injection day so today no exercise! Found a few good movies on Netflix! Blessings and Peace. NeeC

Mark1499 profile image
Mark1499

Down here it’s called “ Alabama Winter “ 32 in the morning then 70 by lunch then back down to 32 by 5. Our closet's arranged entirely different. Winter on one side summer on the other. It’s annoying as hell because you’ll wear a coat to work. Take it off when it warms up and forget to take it home making the next morning extremely cold. We don’t keep a lot of winter coats. Summers are brutal with the most humidity in the southeast so in the summer we use a lot of ac and cooling equipment. I just think it’s the fluctuation that’s so challenging.

stepsforNeeC profile image
stepsforNeeC in reply toMark1499

Yes, I couldn’t agree with you more! Have a great day.

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