Trigeminal Neuralgia

[RoyceNewton]

G'Day, does anybody have any unique suggestion fortreating the pain of this. My face really does not want anymore laser surgery, so is this my only option. Constructive input would be most appreciated.

Royce

[NorasMom]

Unique or constructive, no. Hot water bottle? Orajel? Duct tape? They say duct tape works for everything. 😬 Sorry, Royce. You wanted real help. I have (Thank God and knock on wood) only dealt with it one time for a couple weeks. I hope someone else has a better idea.

[ekelks in reply to NorasMom]

Duct tape,🥰 thank you.

[DM0329]

Hey Royce,

Sorry that you have to deal with that terrible pain, too. Although I've only had a few of those painful electric shocks on my left side a few times, and mostly in the mid-1990's. Hopefully, they won't reappear any time soon. *knock on wood*

Do you have any pain medication? Is the pain too severe for Advil or Motrin? If it's nearly a constant pain, perhaps your neuro can prescribe something? Medical marijuana?

Sometimes doctors are reluctant to prescribe pain medication, but in your situation, I'm sure something a bit stronger would be prescribed to lessen your suffering. Best of luck to you! 😇🙏🙂🤞

[erash]

for me tegretol helped some but , gamma knife surgery was the answer. Hoping you find relief 🙏

[ms23]

Hi Royce, I’m sorry you are experiencing pain. My daughter has bilateral facial pain and the only relief she ever got was from carbamazepine (Tegretol). Unfortunately, she had some side effects and had to stop taking it. We're still seeking a solution but maybe it would work for you. Have you ruled out TMJ?

[RoyceNewton in reply to ms23]

TMJ? Thank you for the input. Condolences to your daughter, Cyber knife surgery may be an option for her, talk to your Dr about it.

Royce

[ms23 in reply to RoyceNewton]

Thank you kindly, Royce. We are exploring every avenue. It is further complicated because she also has had inflammatory arthritis since she was a child. Nothing in this MS world is easy, is it? I so admire the fortitude and resiliency you all share. My daughter inspires me every single day, as do all of you here. I sincerely hope you find a remedy for your TN soon.

[RoyceNewton in reply to ms23]

sorry to say, I won't butlifeislike that, acceptance is ll there is to do in this case. Wish your daughter the best and Merry Christmas.

[goatgal]

Oh dear, Royce, I'm so sorry. TGN is excruciating. My bout with it lasted only about 6 weeks and prescription ibuprofen helped some but it's impossible to forget pain like that. And even though my episode occurred 14 years ago, in certain situations (something brushes the left side of my face, a sudden gust of cold wind), it triggers briefly...as if some serpent lies coiled under the skin, ready to reawaken. I am so sorry. Do call your neuro and get a painkiller.

[RoyceNewton in reply to goatgal]

I have played with it since the beginning 20+ years ago, just hoped somebody might know a treatment that I had missed, did not expect anything but always good to ask. Thanks anyway.

[ekelks]

I'm having the same nasty problem too right now. I'm just taking Gabapentin & waiting for it too work. Can't touch left side of head, eating soft foods -- hard boiled egg mashed with mayo & soy sauce & avocado.. gotta eat. gabapentin knocks me out & makes walking a literal drag, so trying 100 mg instead if 300 during daytime but it's not really working.

read about the surgical options and am not interested, they might not even work. but they are available. as always talk to your neurologist. my beloved neuro retired a few years back, she had a brain tumour, no idea how she is, her replacement just left her practice, my next neuro appt isn't till March. Moral of story: Take advantage of your neurologists while they're still around.

Best of luck, Royce, hoping we both feel better soon, and have happy holidays and a happier healthier safe new year.

[RoyceNewton in reply to ekelks]

Okay advice time. You are warned so delete it if you like. All the tablets will lose their efficiency over time. You will take higher and higher doses to get some relief, it will stop working eventually. Your only option will be surgery. I highly recommend cyber life. Not as acvsry as it sounds, no cutting. no blood, no scares. Walk in, walk out honestly no big deal but a little expensive. You aRE LIMITED TO HOW MANY YOU CAN HAVE IN A LIFETIME SO CHECK OUT THEIR WEBAITE. Go the drug option for along as you can. Good luck I know it hurts, but....

feel free to contact me if you want advice, consolation. I can be cynical but I will try not to be. Good luck.

Royce

[Eksel]

Miriam Eksel:I suggest using Krill oil everyday because it is anti inflammatory with strong Efficiency.

Also good quality of Magnesium twice a day.... One more suggestion is cold pad over the neck and top head.

[sapphire65]

I know exactly the pain you are talking about. It was one of my MS symptoms I developed. I was diagnosed with TJ in 2015. (My MS in 2001) I am prescribed oxcarbabazepine 300mg tab 2 per day, and baclofen 20mg tab 3 per day. I have NO pain now!! It is such a HUGE relief! It used to actually bring tears no eyes with such painful "electric shocks". I do hope this helps you. I wish you the very best!

[ekelks]

thanks everyine i will see