Is there a reverse?

[NanaCC]

Dx 2018, get Ocrevus every 5 months, I have had two actual relapses, none in over a year. Life has been exceptionally stressful at home and work. I feel those little signs, things I ignored before getting Dx blaming being a woman in her 50’s, menopause. Mild vertigo here and there, eyesight a little wonky and I couldn’t for the life of me create a pivot table for work, I froze I couldn’t do it, something I create almost daily. And that damn strand of hair hanging in my face that isn’t there. How do I stop this, what do you do when you feel yourself out of control?

[Xvettech]

honestly I exercise and I pray. Exercise is great cause I use to be able to do kickboxing and I would imagine invisible targets :). I am still searching for a workout I can do now (with mobility getting worse)) Exercise also helps release tension This disease is incredibly difficult. I do find peace in my faith I hope you find your peace! (this place helps a lot too)

[BlanketTime1 in reply to Xvettech]

there's a seated workout series. i use the seated belly dance one, since i used to belly dance before my balance stopped me.🤗

[Xvettech in reply to BlanketTime1]

nice!

[Fancy59 CommunityAmbassador]

NanaCC the 1st thing I would like to ask you is to take a deep breath and realize you're not alone in this fight to reverse MS. As we age you have to remember we have no control over our bodies changes. It's a natural part of living to grow older and to experience unwanted changes in our bodies. No one wants to go through menopause yet can you imagine having babies in our fifties and sixties. No one wants our perfect eyesight to disappear and the bi-focals and readers to be our best friends. And don't get me started about the joy of looking forward to cataracts, and memory issues, and ɓrain fog, etc., etc. Growing old stinks but it is better than the alternative!Try to reduce the stress you experience at work and at home and that might help to solve some of your problems. Stress is a huge enemy to MS and can make it go haywire without you realizing the cause. Next, realize you're not alone in this changing of seasons in our bodies. I know for a personal experience it is a lot to deal with when your MS takes off the same time as menopause and other changes that occur naturally in your body. Nana you're not alone in this journey and please reach out and talk to us, or lean on us any time you wish because we're here to do all of the above. Remember together we are stronger! Fancy59.

[NanaCC in reply to Fancy59]

thank you, deep breaths and a walk after my three meetings, feel better after bed will try to keep it that way today

[Xvettech in reply to Fancy59]

I agree with all but menopause. Look at the silver lining. I’m in my later 40’s (I am?) and MS has made me go into premature menopause. I am happy about that. That is only thing to thank ms for lol! My “friend” was rough for me. Super long and super heavy. Yuck! I am happy to not worry about that anymore, now I’ve bigger fish to fry 😂

[mrsmike9 in reply to Xvettech]

I agree with you! One of the last times I saw "that" doctor I'd heard an add on the radio that it was "National Organ Donation month". I told him that and offered my uterus to anyone who wanted it. I was bleeding so badly that I was getting transfusions! Fortunately I had ALL of it removed and it's been wonderful!

[Xvettech in reply to mrsmike9]

lol that’s funny! And a good idea. They should take all they can get 😂

[falalalala]

Exercise works well for me and square breathing helps calm things down in the moment.

thejoywithin.org/breath-exe...

[greaterexp]

Folks here have some great ideas on adapting to changes as best we can. That seems to be key for me. When things seem to be progressing, or I just can't seem to do what I once did, I try to take a break if at all possible, and then start getting creative in figuring out how I can adapt. I can't take long walks as I once did, but I can work for 4 minutes on the elliptical. I can't go, go, go all day, but I can try to get the most important tasks done when I'm at my most energetic and most clear. This strategy has helped me not feel defeated as much.

[carolek572 CommunityAmbassador]

I put myself in a time out, throw a pity party, and let it all hang out,  NanaCC . It helps that I can talk with someone, but that’s not always available, so the person in the mirror is it. I am not one to be around when I am in a mood. One thing that I can tell you, be gentle with yourself and allow yourself to vent with no judgement. Hope this helps. 🤗

[mrsmike9]

More like, "when do I find myself IN control". Actually that mindset helps me not sweat stuff. Like I know I'm going to be having surgery on my neck (the cord is compressed) and I'm like, well, it will happen and then I'll go on. The worst part is not the surgery but the placing of the IV, which lasts only a few painful moments.

[Tazmanian]

Be glad you're still able to work smile and carry on

[twooldcrows]

i too have those same problems , things that we have done before and then just out of no where can't remember ......wow it really gets to me also but if i wait for a minute or two or need to sit and relax and it comes back ...just a little slower or sometimes like i didn't forget ...it is scary to think this could go on and on but that is why we have to keep busy using our brains one way or another ,doesn't have to be building something but just using it more than just sitting and watching tv ...take care and love yourself for sometimes we forget we are a great person...laugh and tell jokes ..call an old friends , go for a walk ...

[NanaCC]

Pampering myself got a haircut having lunch then off to buy an outfit. It’s been forever since I had some me time. Already feel better or is that the Bloody Mary. Peace and thank you my ms warriors I like that name.

[ahrogers]

The worries of how much longer I can work get me down sometimes. I got a referral to PT and OT to see if it can help the foor drop, leg, hand and arm weakness. Trying to accept the changes and finding ways to slow it down is what I do to cope. Some days are better than others!