My experience flying for the first time ... - My MSAA Community

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My experience flying for the first time in 24 years, with MS

MSFlea profile image
19 Replies

Pictured is Finley, my MS Adventure Buddy, orange 🧡(of course) for MS, in front of my window (hubby made sure I had a window seat!) on my very first flight in 24 years🛫 And doing it with MS!

We got there super early, I'd read conflicting things about getting the wheelchair assistance, some said they would have it waiting for you when you checked in, some said there were lines. There were lines! Thankfully, we discovered that hubby could push my wheelchair, so we opted for that. These things are not built for comfort. There is no lumbar support at all! So, with that line taken care of, we ate at one of the restaurants in the airport (they are not great, and super expensive! Eat before you go!). And discovered the problem of the disappearing waitresses. The guy at the table next to us had been waiting for so long, he had 10 minutes to get to his gate (thankfully it was nearby) because his waitress just... didn't come back. So we paid early. People stared. A lot. I'm supposing it is because I'm only in my mid 40's and I was in a wheelchair. They can get over it. Using a cane around the town I do, I've gotten used to the stares, mostly.

We boarded early. The people helping were super nice.👍 Took me right up to the door of the plane and asked if I needed assistance. Getting off the plane was another matter. We got off early. With, as you guys described them, the buffalos. I nearly got a suitcase on my head because of this one guy who was extraordinarily rude, in a rush, and ignoring everyone around him. He yelled at me. I ignored him.

We didn't bring cash. If you go on a plane and are going to be going on buses to take you places, bring cash for tips for them helping you with your suitcases. Yes, it is their job, but they expect tips🫠 They also have Venmo. 🫣Usually. I did read that some airlines don't pay their wheelchair assistance people enough and expect you to tip them. Thankfully Delta is not one of those companies.

I did get really dizzy taking off and landing. But, this particular pilot liked to hard bank (turning the plane to the left or right on it's side). Or maybe traffic was really bad in the skies that day. All I know was it made me extraordinarily dizzy. More than usual. Dramamine didn't help. Zofran helped a little bit, because the extra dizziness from the plane taking off and landing and hard banking, made me really nauseated.

Almost all the people that helped with the wheelchair assistance were really nice and had great attitudes. Getting help through TSA was great. I had no clue what to do (TSA in the airports, doing checks, was not a usual thing last time flew commercial), but they walked me through everything. The only one that was truly awful, was the very last one coming home. She insisted on helping push the wheelchair. That was a red flag, but we were tired and didn't feel like arguing, just wanted to get home. She was yelling, "wheelchair" loudly, at the crowds, and "get out the way". And even cussed a few times at people to get out of the way. I was so embarrassed to even be there. She was getting off shift, apparently, and was using zooming with me as an excuse to get out of there faster. 🫣🫠

Overall, it was a great experience. I just had those two bad interactions. I'm not going to let it cloud the rest of my experience, though. Everyone else was great. Had to have my phone out with the app out for all the interactions. The app made everything so much easier. I have a very distinctive suitcase, and I was completely caught off guard when someone had the exact same suitcase! Good thing I got one of those tags to put on mine with my last initial to make it more distinctive. And I just got an orange butterfly to put on it as well, Teen 1 found it, to make it even more distinctive 🦋I definitely recommend a distinctive tag!

Thank you all who chimed in on my post asking about flying! Made my trip go much more smoothly! Especially about keeping my meds in my carry on bag! I researched more on that, and my suitcase probably would have gotten stolen if I'd put them in there! 🧡✈️

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MSFlea profile image
MSFlea
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19 Replies
CatsandCars profile image
CatsandCars

I'm so glad that you're trip was a mostly positive experience! The dizziness sounds terrible; nausea is one of my least favorite things. I'm glad you had Zofran with you! Maybe I missed it, but which app did you need to keep open?

Thanks for sharing your experience with all of us, so we'll know what to expect! ❤️

MSFlea profile image
MSFlea in reply toCatsandCars

Oh, I flew Delta🛫, so the Delta app! Keeps your ticket on it, so no chance of you loosing it, keeps you up to date on what gate to go to, if it changes (ATL airport is huge and last minute gate changes happen all the time, I'm told), plus where your plane is currently at... so many things, I actually put the Accessibility on my ticket once I downloaded the app, with just the push of a button. Plus, each time I got to the airport, or on/off a plane, the Accessibility people had to check my ticket to make sure I was me, and all that, and having it just on my screen and ready to go so they could scan it, made it so much easier!✈️🧡

CatsandCars profile image
CatsandCars in reply toMSFlea

Sounds like a great app! Of course, I would probably be dropping my dang phone the whole time, but that's just me. 😅 Thanks again for sharing your experience. ❤️

MSFlea profile image
MSFlea in reply toCatsandCars

The only problem I had with it was getting my phone unlocked in time to have it up for them to scan! 😅My fingers are much slower than they used to be, but we managed 😀😂

WrennyJen profile image
WrennyJen in reply toMSFlea

I love the Delta app!

MSFlea profile image
MSFlea in reply toWrennyJen

I didn't even know it was a thing till hubby had me download it and showed me how to use it! 😅🤣It is an awesome tool for when you fly!!✈️

Amore55 profile image
Amore55

Very good information, I am so glad you had success. Thanks for sharing this with us! 🥰

johnMSAA profile image
johnMSAAPartner

So glad it was a successful experience!

Speaking of "success"...you may recall I shared this on your initial post about flying a few months ago, but I'll share it here again in case any new members are reading this first:

Anyone interested in a discussion on the unique challenges that traveling with MS can pose no matter what type of travel, you can check out our MSi video recording of our recent webinar with Dr. Yolanda Wheeler, "Successful Travel with MS" here:

mymsaa.org/videos/successfu...

- John, Multiple Sclerosis Association of America (MSAA)

MSFlea profile image
MSFlea in reply tojohnMSAA

I did watch a good portion of that video, and have it saved in my bookmarks! Thank you for sharing it! 🧡

mrsmike9 profile image
mrsmike9

I'm so glad that you survived and it wasn't as bad as it could have been.

MSFlea profile image
MSFlea in reply tomrsmike9

Thanks! There is no way I would have been able to make it through the airports without the Accessibility that the airlines have! The wheelchair may not have been great on my back (no lumbar support!) but it was a lifesaver going through the airport!

falalalala profile image
falalalala

👍👍😀

Blanketttime1 profile image
Blanketttime1

i'll be travelling soon, so thx!! i wouldn't have thought about cash tips or lines. i guess i'll get there extra, extra early.

MSFlea profile image
MSFlea in reply toBlanketttime1

Good luck with your travels!!🧡

kdali profile image
kdali

I'm glad you had a great trip! I bring purse bacon when I travel.

MSFlea profile image
MSFlea in reply tokdali

purse bacon? I'm very curious now!! 🥓

kdali profile image
kdali in reply toMSFlea

Yes! I cook bacon and put it in a ziplock bag in the fridge. It goes in my purse when we travel, usually with a hard cheese or another protein source. It beats pricy gross airport food, encourages hydration since it's salty, and curbs hunger until you can find a place that has real food.

MSFlea profile image
MSFlea in reply tokdali

I ❤️this idea!! I'm so doing this next time! That is awesome 🤩

kdali profile image
kdali in reply toMSFlea

Works for any road trip really!

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