Hello!: I am new to the group and a... - My MSAA Community

My MSAA Community

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Hello!

brendaobrien profile image
β€’26 Replies

I am new to the group and a description of me is on my profile. I hope this finds everyone in the best health that we can achieve.

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brendaobrien profile image
brendaobrien
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26 Replies
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Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi @brendaobrien welcome! πŸ™‚ How are you doing today?

There are ppl here on Mavinclad, what have you been taking? πŸ€—πŸ’•πŸŒ 

brendaobrien profile image
brendaobrienβ€’ in reply toJesmcd2

I have been taking AVONEX since 2006. My MS hasn't progressed until this year. What problems does Mavinclad have?

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tobrendaobrien

So sorry for taking so long to get back to you.. lm always a day late πŸ€£πŸ˜‚πŸ€£ you can check out MSAA's new site mymsaa.org/ms-information/t... The Ultimate Treatment Guide, tons of info on there! πŸ€—πŸ’•πŸŒ 

falalalala profile image
falalalala

Welcome! :)

BlanketTime1 profile image
BlanketTime1

welcome!πŸ€—

Fancy59 profile image
Fancy59CommunityAmbassador

Hello Brenda, right back at you. This is Fancy59 welcoming you to our family. We love to tell jokes and pass along information that we can to help each and every one of us live our lives to the fullest and Manage their MS as much as possible. We hope to hear from you soon with questions or Funny antidotes because we love all of them! Fancy59.

brendaobrien profile image
brendaobrienβ€’ in reply toFancy59

Thank you - Jokes I can handle, I will pass them along!

brendaobrien profile image
brendaobrienβ€’ in reply toFancy59

I think I sent you a reply before, but I am new to this site so please be patient. My cognitive functions are lacking, but I keep on trying!!

twooldcrows profile image
twooldcrows

welcome ..i don't know anything about the meds but there are others that probably can help....lots of us in different stages of MS ..we all try to help each other and pray for them if ill or have family that are ill...take care and ask any questions about it and hope you get some great answers that help you ....love and much happiness and loads of laughter ...

brendaobrien profile image
brendaobrienβ€’ in reply totwooldcrows

Thank you, I am looking forward to being part of this group!

Sandydemop profile image
Sandydemop

hi Brenda, Welcome! I just had my first 5 days of Mavenclad in late November. not noticing any changes so far. all it can do is stop the progression is my understanding so if i don't get worse it's working? can't tell just yet.

brendaobrien profile image
brendaobrienβ€’ in reply toSandydemop

Thank you, I am looking for any and all comments. I haven't decided yet, but I need as much info as possible.

Sandydemop profile image
Sandydemopβ€’ in reply tobrendaobrien

sure. my doctor said it was the least offensive of the options. Her second choice was Kisimpta. i understand there is a Mavenclad facebook group if you want to check that out.

Jer29-11 profile image
Jer29-11

Hello and welcome!

JSSimp profile image
JSSimp

WelcomeπŸ™πŸΎ

Elizt3 profile image
Elizt3

Welcome! Glad you found us. I find this place to be a good mix of information and support and humor and daily life

Kenu profile image
Kenu

Welcome to our crazy group of MS’ers πŸ€ͺ It’s a great place to vent and find out reality from people who are experiencing things first hand and are going through the same things as others. You get honest feedback from people who care about you and are not doctors. Enjoy your journey and don’t be afraid to ask questions and comments πŸ‘πŸΌπŸ™πŸ˜‰πŸ€ͺπŸ˜‚

brendaobrien profile image
brendaobrienβ€’ in reply toKenu

Thank you - those are the reasons why I am trying it out. I only have one friend who has MS and when we talk I seem to get the most help. But info for everyone seems to be in short supply. I know no one has all the answers, but other people who have MS seem to be better fit to tell you what to expect.

lbenmaor profile image
lbenmaor

Hi brendaobrien! Welcome to our group!πŸ˜€πŸŒΊπŸŒΈ

Leslie

Tazmanian profile image
Tazmanian

Welcome to our group sorry you need to be here but we're all in the same place

hairbrain4 profile image
hairbrain4

Welcome to the group! This is a great place for a laugh, to cry, to vent & get information. Glad you found us!

mrsmike9 profile image
mrsmike9

Welcome! So glad you found us!

kdali profile image
kdali

Welcome! I started Mavenclad in July, so far it's been the easiest med I have had! It's a 2 yr treatment, so I will not know how effective it is in my body for a while yet.

Cutefreckles72 profile image
Cutefreckles72

Hello brendaobrien, Welcome to the group. . Excellent group to learn from. πŸ‘πŸ˜

Irishgirl76 profile image
Irishgirl76

welcome and peace to you this season and the seasons of your health. My journey is similar but I feel becomes difficult in the health care system no matter where you live. Health care,insurance, doctors all need to update and not practice just the old. Medicine and therapist should be changing with us. We need to advocate our needs and doctors need to give us concrete results of our changing bodies and health. We need education and accountability. Sorry for negativity but I feel frustrated. I continue to celebrate your journey. Christmas blessings πŸ˜‡

brendaobrien profile image
brendaobrienβ€’ in reply toIrishgirl76

Merry Christmas to you and yours! I am very fortunate in that my husband is my caregiver. In his life he was as a shop Vice President of an engineering company and asks doctors LOTS of questions. He keeps asking until he is satisfied that he's gotten all the answers. If I ask a question and he feels I didn't get an answer that I understood, he then starts with his questioning. I know exactly how you feel about our health system, and all I can say is that it will get better!

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