I have RRMS: Have had it since 201... - My MSAA Community

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I have RRMS

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’15 Replies

Have had it since 2015! 😯 March to be exact! Since then l have learned soooo much! And i sure didnt run out and buy depends! πŸ™‚ I have learned to get knocked over and over again.. Get back up and know lm still good! πŸ™‚

I learned that everyones MS is different! And no one should tell another how to live there best lives... Because sometimes if you listen, they are giving their best.... πŸ™‚

Now, l might not have had this for oh idk? 780yrs?

But.. RRMS? Its not always bad! πŸ€£πŸ˜‚πŸ€£ geeze

πŸ€—πŸ’•πŸŒ 

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Jesmcd2 profile image
Jesmcd2
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15 Replies
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jimeka profile image
jimeka

Well said Jes ,I think what you say also applies to PPMS, ms is what you make it, and there are no set rules. Just because one person declines quickly, it doesn’t mean we all do. Ms is a very individual disorder, no two people are the same. πŸ‘

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tojimeka

Very very true! Everyones MS is different! πŸ€—πŸ’•πŸŒ 

falalalala profile image
falalalala

Thanks for posting this.

I like your attitude very much and while I understand that having MS is not easy and people might want to talk to others about their struggles, I can't live in a state of dread and doom and gloom 24/7.

There is more to my life than MS.

carolek572 profile image
carolek572CommunityAmbassadorβ€’ in reply tofalalalala

Yes, indeed there is, falalalala ! :-D

Sandydemop profile image
Sandydemop

Hey there Jes, live your best life no matter what, right?

kycmary profile image
kycmary

Any person who deals with a chronic disease is on an adventure that's the way I get through my life.

Graip76 profile image
Graip76

I have PPMS and it is amazing how many people have crystal balls and know your future or feel compelled to tell you horror stories about someone they know. Thank you for your post. Everyone is different! My doctors have told me the same and for PPMS there is now a treatment that wasn’t available 6 years ago. The future should be encouraging not dreaded. Take care! Thank you again for a positive post 😊

leking1 profile image
leking1

Good Morning, Jes! I like your post! I used to have RRMS but I outgrew it and I now have SPMS. As you said, everybody is different, some people will do this, a lot will not. I don't know that is better or worse than the OTHER MS, it's just different. I like Falalala's attitude and I can identify with it. I've lived with this disease for 40+ years, and I can't start worrying about it now...it is something I deal with, it s Not who I am, and I have too much I want to do to waste my time ! So, do what you want to do, live your life the way YOU want to, and BE HAPPY! Linda

twooldcrows profile image
twooldcrows

well said ...we do will do what we can and can try harder on somethings if we think some things will help it ...i just keep pushing on and on thru thick and thin good and bad ...yes there are times after words i will have to stop and take some breathers but that is me for i will not stop till it takes me away for good ...i feel better after i have pushed myself but that is me ...all take care and be safe ....love and much happiness to all ...we live with it for nothing is there yet to stop it ...we just slow it down...

kdali profile image
kdali

I'm here for the knock downs and the get back ups. There's all kinds of ways to do those!

Cutefreckles72 profile image
Cutefreckles72

Thank you, Jes. I have PPMS and everyone is different. MS is painful mentally and physically. Keep pushing and Hang in there. Love my MS family. πŸ™πŸ½πŸ‘

BlanketTime1 profile image
BlanketTime1

i'm glad you're so positive. we need thatπŸ€—.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toBlanketTime1

Dont get me wrong, we all know its not easy... And their are days l positivly hate it! 😑 but hate is a wasted energy... l have better things to do! πŸ€—πŸ’•πŸŒ 

BlanketTime1 profile image
BlanketTime1β€’ in reply toJesmcd2

πŸ€—β€οΈ

carolek572 profile image
carolek572CommunityAmbassador

C’est la vie, Jesmcd2 ! πŸ₯°

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