What Does..

[Jesmcd2]

What does Multiple Sclerosis mean to you? 🤔 Im sitting here, typing and asking myself the same question, and all l know is its a pain in the butt! 🤣😂

So what does it mean to you? 🤗💕🌠



[bxrmom]

I agree, it's a big pain the butt!

[Jesmcd2 CommunityAmbassador in reply to bxrmom]

Except when it comes to jury duty right? 😂🤗💕🌠👻

[Sandydemop]

changed the trajectory of my life. i am doing fairly well despite MS

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

Fairly well? 🤔 l need a better answer than that missy! 🙂🤗🤗💕🌠

[Sandydemop in reply to Jesmcd2]

Ok. if you must know...I'm doing well despite ms

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

🤗 Thats a little bit better! 🤣🤗💕🌠🎃

[Sandydemop]

should i say life has never been better? i have only just begun to live up to my potential (so I was told).

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

🤣😂🤣😂 I have been told i have never lived up to my potential... So its all good! 😂🤣🤗💕🌠🎃

[Sandydemop in reply to Jesmcd2]

😀😀❗

[Sandydemop in reply to Jesmcd2]

i have been told that since first grade

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

have the same mother?🤔😂🤣🤗💕🌠

[Sandydemop in reply to Jesmcd2]

exactly. Mine said she went to the school of hard knocks so...yeah.

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

Mine went to an all girls prep school, you can image her disappoint🤣😂🤣🤗💕🌠👻

[Sandydemop in reply to Jesmcd2]

Hey Jes, you are SO not a disappointment here. I appreciate you very much!

[Jesmcd2 CommunityAmbassador in reply to Sandydemop]

Sorry about the miss spell.. phone rang🤣😂🤣 And Thank you so much! I appreciate that! 🙂🤗💕🌠🎃

[NorasMom]

To me it just means that I've had to find different ways of doing certain things.

Everybody goes through various life changes, and circumstances tend to dictate new lifestyles. A torn rotator or slipped disk in your early 20's might mean that you can't play those sports in your 30's. Having kids means you stop meeting work buddies for Happy Hour or don't stay out past 11 because the babysitter has a curfew. I've needed wider shoes since giving birth, and I'm now sensitive to strong colognes. I don't look at MS much differently than I do the fact that I wear glasses. It's just a part of my life that I work around but occasionally swear at.

[Jesmcd2 CommunityAmbassador in reply to NorasMom]

🤣😂🤣 occasionally swear at! Love it! And your attitude! 🤗💕🌠👻

[NorasMom in reply to Jesmcd2]

I was raised primarily by men and spent 30 years in the heavy equipment and petroleum industries...

"I don't curse. I speak fluent trucker with a sailor dialect and a construction accent."

[Jesmcd2 CommunityAmbassador in reply to NorasMom]

🤣 I grew up with 2 younger brothers with 3 step brothers (younger) on a farm😐 before we moved to alaska in hs.. at 18 I had some amazing Navy friends! And boy did they teach me well! 🤣😂🤣🤗💕🌠

[Sandydemop in reply to NorasMom]

same as Jes

[Kit10]

I don't know because I've had multiple disasters in my life and I don't know how much is down to the MS and how much is down to the others. Nothing works if I get too hot. That's the only thing that's definitely down to the MS. Well, probably definitely. No pain. Knees don't work, but that has multiple causes.

[Kit10 in reply to Kit10]

p.s. another thing it means is, physiotherapists etc assume that every problem is caused by MS and therefore I don't get the help I need to recover from other disasters.

[Jesmcd2 CommunityAmbassador in reply to Kit10]

Thats not a good thing Kit10 , have you pushed the issue with your drs? Sometimes, you really have to be your own advocate and not let them just push you aside... 🤗💕🌠🎃

[Kit10 in reply to Jesmcd2]

If you knew me you would know that I am a fighter. But I don't always win.

[MsBoo]

It's like walking in the woods without a flashlight. You don't know what will be just scurrying up a tree ahead of you or jumping out at you from around the corner. But always the kittens trying to climb up your legs.. and the spider webs holding your arms and legs in their tight grip...

All is possible with MS.. all or none.. no time limit.. no forewarning..

[melack01]

The end of ever trying to be normal. I agree with Kit10. Most of the doctors attribute everything to the MS and yet my neurologist sees most things as not being the MS. So, basically most other issues are just shoved to the side. As far as mental health, I go to the VA. If it isn't because of the MS or my time in the service it's discounted, so I gave up getting any help in that regard.

[NanaCC]

words I can’t use on this sight. Diagnosed in 2018 I have been pissed since. I don’t feel sorry for myself but I think me and mine have enough challenges. My husband is diabetic, had open heart surgery this year and has Parkinson’s. We added a second handicap bath in 2017 for him so I thought, 2018 I got diagnosed. If you met me or know me I am happy go lucky person, always positive. But I am pissed.

[Jesmcd2 CommunityAmbassador in reply to NanaCC]

🤗🤗Thats understandable my friend and its ok to be pissed. Cause its not fair, l get it🙂 Dont let it consume you tho, it gives it more power than it deserves. Just take one day at a time, someone told me once... if you wake up in the morning and things are moving ok, then its a good day! And we are always here for you! 🤗💕🌠🎃

[falalalala]

I think it's a test.

[Jesmcd2 CommunityAmbassador in reply to falalalala]

A test?

[falalalala in reply to Jesmcd2]

Yep.

A test of tolerance, patience, grace, you name it.

[Jesmcd2 CommunityAmbassador in reply to falalalala]

I failed😟🤗💕🌠

[falalalala in reply to Jesmcd2]

Oh, I get an E once in awhile.....

for "Excellence" ᶦⁿ ᵐᵉˡᵗᵈᵒʷⁿˢ🤣🤣🤣

[green244 in reply to falalalala]

I failed, too. Watching my friends traveling the world while I play nursemaid to my very handicapped husband. I have adjusted my attitude to one of acceptance, but patience is not my strong suit. I married him for his independence among other virtues, most of which are still there thank goodness.

[NanaCC in reply to falalalala]

tests sucks

[Jesmcd2 CommunityAmbassador in reply to NanaCC]

agreed!🤣🤗💕🌠🎃

[kdali]

An abusive relationship.

[Allen5280]

My Misery (is on) Steroids

[Jesmcd2 CommunityAmbassador in reply to Allen5280]

🤗💕🌠👻

[kycmary]

I am a SURVIVOR! 28+ yrs.

[SaltyGirl]

MS means I keep studying and learning to fight this unpredictable, mysterious malady. It’s too much to learn so I walk by faith, and trust in my Lord Jesus to deliver me every day. One day at a time! I trust science and my Savior working together to heal me through and through.

[mm1527mm]

i think Ms has made me grateful for life in general and for another day. I was very depressed when first diagnosed and still have breakdowns but I try to remind myself it is not a death sentence and be grateful for each day of life

[Sapphire34 in reply to mm1527mm]

Hi, I agree, I was diagnosed march 2022. But initially I was told 10 years prior it could be ms. I have to say that although it's a horrible horrible diagnosis I have started to live my life (as well) as I can. Obviously we don't know what lies ahead for each of us with ms. So I'm making the most of it while I can x

[Koalagreen]

when I begun with MS in 1998 I followed working. The diagnostic was fast . But I had differents moments with neuritis, the right leg, the right arm, paralysis face, but after being without work , in 2007 the illness was stabilized.

So, maybe , if you care for yourself, you can work. If somebody don’t care for herself or himself, is difficult to work and live with MS.

My case was that when I worked with MS I smoked, not sport, not rest, always with stress.

And maybe the stress is the worst thing in a work

If you have work and you smoke, no to eat well, or not do sport , or not you sleep 8 hours well.

[Jesmcd2 CommunityAmbassador in reply to Koalagreen]

Good advice Koalagreen 🤗💕🌠

[BlanketTime1]

i'm imagining everyone balancing b/w walkers and guns😂.