Post injection reaction to copaxone

[Blue000]

Has anyone had a reaction to copaxone where after injecting it your chest felt like it was being squeezed along with dizziness and followed by cramps in the chest. What did your doctor instruct you to do? Been on copaxone for about 15 years and this never happened before. Happened again last night only milder. Called md and pharmacist but left with doubts about taking it again.

[Kenu]

I was on Copaxone for 12 years and never had that side effect ? Hopefully you find out and can continue treatment 👍🏼🙏🐾🐾

[Blue000 in reply to Kenu]

Thanks it’s worked well for me but I’m also running out of injection sites.

[Kenu in reply to Blue000]

I have been off Copaxone for 15 years and still have bumps on my belly from it. 🐾🐾

[bxrmom in reply to Blue000]

That is what happened to me (that was my first rx starting in 2006 until I switched to Tecfidera approx 3 years ago. I am not on the generic form of it and there has been no difference between them that I have noticed. I'm doing great on it. My white cell numbers are on the low side and if they go any lower my neuro wants me to take a break. I am JC Virus positive, but on the low side (.92) so my Neuro said I can stay on Tecfidera.

[Blue000 in reply to bxrmom]

Thanks, I’m running out of injection sites would like to try an oral med.

[kdali]

I don’t think I mentioned it to my MD, but I assumed my pregnant legs were the issue and I was shooting too close to enlarged capillaries (which I can’t see), so I stopped the legs for a few months. I hope you get a call back!

[falalalala]

Yes.

I felt the tightness in my chest with difficulty breathing.

This was after I would fall to the floor unable to move my legs.

My doctor told me to stop taking Copaxone immediately and I did.

[Blue000 in reply to falalalala]

Thanks, I was expecting the nurse at the neurologist to tell me the same thing, I better call them back !

[falalalala in reply to Blue000]

Yes, I would.

good luck

[Blue000 in reply to falalalala]

👍🙏

[MaryAZ]

I had a terrible reaction. My heart was racing with heavy breathing and serious shakes. It happened two times in a row. I called the nurse line and was told to stop immediately. I was then switched to Rebif. A few months later, I had an appointment with a different neurologist at Mayo Clinic. After reviewing my MRI reports, records and spending a full hour with me, he changed my diagnosis from RRMS to PPMS. This was 4 years ago. I have not been on any meds since and have definitely progressed.

[Blue000 in reply to MaryAZ]

Thanks, just took another dose so far no reaction! If it happens again may have to stop it.

[agate]

Blue000, I hope you're staying in contact with the doctor about this reaction. I'm taking Copaxone (in the generic form) and have taken it for a total of nearly 4 years now, never had that reaction, but if I ever did have it, I'd wonder about staying on it.

[Blue000]

Thanks, having an mri next week and will call MD afterwards and discuss the reaction. I’ve been taking it for 15 years and been doing well, I’m afraid to switch meds.