Were the breaths I took worthwhile today? Is my purpose worthwhile? Am I an asset to somebody. These are the questions I ask as each day fades. Does my life have a meaning? 20+ years with this illness, these are the questions I ask. Am I purposeful?
That is one thing, we have a lot of time to think. "YOU" are just starting out. I understand the fear the uncertainty. Honestly, I do not think it ever ends. Let yourself have a purpose. Try in whatever way that "YOU" can' to be a beacon for somebody at some time. Perhaps not all the time, but sometime.
Royce
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RoyceNewton
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Hi Royce, thanks for the question. I like the idea of taking an inventory at the end of the day. Asking myself: Did I help somebody today? what is my purpose? good questions.
Thank you for your kind words! I really struggle with acceptance and am often angry with my diagnosis! I feel super deflated when my body doesn’t cooperate (which is all the time) and long to return to “normal”. I only think that if I feel this way now, what is going to happen as it progresses!
it may not progress, chin up, there is no reason that this happened. It Happened only because you are Homo Sapien, and this disease strikes Homo Sapiens. Luck of the draw so to speak.
Have you a limit of years for your tratament ?I want to say if you are x years old, could you have your tratament when you are 2O years more? Is possible your tratament without limit of years ?
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