How did you find us?: Some of us have been... - My MSAA Community

My MSAA Community

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How did you find us?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
47 Replies

Some of us have been here since the beginning of time!

Some of you may have just joined!

How did you find us? ☺️

I remember getting an email from MSAA about Our Community. And decided to see what was up. The rest is history!

Did you get an email, or see it in the Motivator, or even look us up?

Share how you found your way here! We would love to here from you!

Smile! It catches people off guard!☺️🤗 💕

Jes🌠🦈

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Jesmcd2 profile image
Jesmcd2
CommunityAmbassador
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47 Replies
greaterexp profile image
greaterexp

I was being tested for MS, but was pretty sure that would be the diagnosis. I started looking for information and support and MSAA came up right away. What a great find!

Morllyn profile image
Morllyn

I think that I got the same email 📧 as you Jes.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toMorllyn

I think we did Morllyn 😂🤗💕

Kenu profile image
Kenu

Thru MSAA 👍🙏😉 Ken 🐾🐾

falalalala profile image
falalalala

I saw an article online by a man with MS and it hit home at the time.I stayed at that site for a month or so, then found this one.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tofalalalala

We are glad you choose to stay here instead falalalala even if you see elephants!🤣🤗💕

J🌠🦈

falalalala profile image
falalalala in reply toJesmcd2

Thanks! Me too! 🤣

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tofalalalala

Didn't think I saw that did ya?🤣😂🤣🤗💕

falalalala profile image
falalalala in reply toJesmcd2

🤣🤣🤣

johnMSAA profile image
johnMSAAPartner

This is an excellent post, Jesmcd2 ! Curious to see how everybody responds...

- John, MSAA

rjoneslaw profile image
rjoneslaw

I was just checking out different ms sites and came across this one.

At one point I was going between this group an another I asked the same question on both sites. The other site told me we don't post that on our site but the question had been asked several times ( all I was doing was asking a follow up question to the original question), then they wanted me to do their work for them and find the question that was originally posted on their site and I just left them alone after that.

Now that site sends me an email asking me how I'm doing and if I'll come back no thank you.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply torjoneslaw

Did we give you an answer then? I'm afraid to ask.🙄🤗💕🌠

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toJesmcd2

We are glad your here tho!!🙄 They lost out!

rjoneslaw profile image
rjoneslaw in reply toJesmcd2

I'm glad I'm here as well.

I have learned, received support, laughed and given back as well.

rjoneslaw profile image
rjoneslaw in reply toJesmcd2

Yes a very good answer.

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply torjoneslaw

😊😊That other site's loss is our gain, glad you are with us!😊😊

I was searching for a support group for MS and ran across the site and i was very interested to hear other's stories. I'm so glad I joined this family of fighters❤❤❤

kycmary profile image
kycmary

I get the MS Focus mag & found it in there. Mary

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tokycmary

Way to go MS Focus!! ☺️ We can hook you up with the Motivator kycmary 🤣🤗💕 love that you're here! 🌠🦈

kycmary profile image
kycmary in reply toJesmcd2

Thanks Jess I get the Motivator also

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Jesmcd2 I found our group even before receiving my MS diagnosis. I knew MS was a possibility and was doing computer research. Found it, joined it, loving it. Found out later, I was one of the first group of members. August 16, 2016!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toCalfeeChick

I remember well CalfeeChick 🙄 you were here a day after me.🤗💕🌠🦈

carolek572 profile image
carolek572CommunityAmbassador

I was (still am) receiving emails from MSAA and I remember seeing something about this forum. I joined, and the rest is history. I never really imagined that it would be this place that I would be visiting daily, finding a lot of useful resources and information on how to cope with 'ms'.

I now know that I am not alone in dealing with 'ms', and

Together, we are Stronger,

Keep Smiling,

Carole :-D

Tinker-Belle profile image
Tinker-Belle

I think I got an email, too.

RoyceNewton profile image
RoyceNewton

No idea, I go to msAA lunches so I guess maybe at one of them. msAA does assist me with MRI's so perhaps somebody told me there. msA is a very helpful organisation

Bodega1939 profile image
Bodega1939 in reply toRoyceNewton

Yes, MSAA was where I found HealthUnlocked. I am grateful for both organizations and their differing foci.

jimeka profile image
jimeka

I was already a member of health unlocked on the restless leg forum. One day I was just searching what else they had to offer and this forum came up, so I joined. Feel as though I have been here since the beginning of time 😂

Weldon60 profile image
Weldon60

I have had MS for many years, but only recently learned about MSAA. I got some emails from them and have gone to one of their programs. I then got an email about this online blog and I signed up.

Angelchef80 profile image
Angelchef80

The doctor that diagnosed me gave the info.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toAngelchef80

That's pretty amazing Angelchef80 ! Thank your Dr for us!🤗💕🌠🦈

leking1 profile image
leking1

I got an e-mail, checked it out, and decided to join. I am so glad that I did!

pamgarner profile image
pamgarner

I saw an ad through the mail, for msaa,wheelchairs, cooling vests ,mri assistance,and I checked it out and found my sanity!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply topamgarner

Or insanity? 🤣😂🤗💕🌠🦈

melack01 profile image
melack01

I was googling everything to do with MS. I found MSAA and then this site. It's not so much the answers I've found as the knowledge that I'm not alone in what I'm going through.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tomelack01

It's been awhile melack01 🤗 how are you doing??🤗💕🌠🦈

melack01 profile image
melack01 in reply toJesmcd2

I'm doing ok. Between depression and fatigue I haven't been into doing much. I also had some major issues with incontinence which luckily resolved itself. Didn't have much luck getting my doctor to refer me to a urologist. I'm just starting to pay attention to the world around me again.

Ravenrapunzel profile image
Ravenrapunzel

I don't remember! I think it was through MSAA

Lilith08 profile image
Lilith08

I don’t remember, either! I know for sure that I joined another forum through an ad on Facebook (when I was still on FB) but I don’t know how I found my way here. I’m glad I did, though—good info, good people, good vibes.

bxrmom profile image
bxrmom

I really don't remember how I found the group. I know I was looking for something after a yahoo group I belonged to didn't have many messages after Facebook came on the scene. I think I may have came across the group when doing a search online and this was by far the most friendly and responsive group I have found.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tobxrmom

Yahoo!🤣😂 Yicks! I remember Yahoo chat rooms.😔😭🤣😂🤗💕🌠🦈

bxrmom profile image
bxrmom in reply toJesmcd2

In the beginning, they were informative and busy with emails but ever since FB was started there were hardly ever any posts or lots of spam that would slip through. I was very lucky when I finally found this wonderful group with all the GREAT people!

Jessie

Doubled51 profile image
Doubled51

Actually on my first visit My neuro actually gave me the name of MSAA to check the treatment option that I might be interested in on my first visit. After that while exploring the site I came across this forum and the rest is history. Me being dxed only a few days before I was curious to learn all I could and you ad so many others helped me thru some tough times and made my first few months so much easier to endure.

That I would never be able to do what I could before but life wasn’t over. Just take what came at you day by day and made me feel comfortable doing it.

So a big thanks to all who helped me get they those trying times.

God bless you all.

Donnie

Jazzihorsecat profile image
Jazzihorsecat

Hmm, Jes, well, it was just last year'2018, after being in limbo for 11 yrs. Of Dx, I was searching google, & National multiple Sclerosis Society, & through that google search, I found the bestest family ever👍😍😀🙏💐💙☕🍫😉 (Here!) I am so glad to be here, & glad all the friends/other family members are here too! L💙VE YA'all!👍👍👍😀😍Jazzy🌹💜

hairbrain4 profile image
hairbrain4

I got an email. I had donated money & soon after I hit an email & decided to check it out

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tohairbrain4

Thank you so much hairbrain4 ! And we are glad you are here! 🤗💕🌠🦈

Ali_B62 profile image
Ali_B62

I was on the Health Unlocked weight loss forum and somehow found this. I have lost some weight but this group is far more important. :-)

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toAli_B62

We are most definitely more important 🤣😂 🤗 💕 🌠🦈

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