Post 734 Know YOU RRms 9 Apr 2021 - My MSAA Community

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Post 734 Know YOU RRms 9 Apr 2021

RoyceNewton profile image
3 Replies

G’day my relapsing-Remitting ms RRms family. “YOU” are all and coping today, aren’t “YOU” RRms might be challenging BUT “YOU” are more than capable of facing the challenge, no matter what. Have that attitude today, tomorrow, and every day of your long ms life. Say to yourself ‘I do not like this, it may knock me down. BUT I am going to keep getting up. I will brush off the dust. Cry my tears, BUT I WILL KEEP CARRYING ON” Have “YOU” ever seen the picture of a frog being eaten by a Stork and strangling the stork. It is quite amusing, look for it online. Be like that frog. No matter what RRms may throw at “YOU”, Straighten your shoulders, look straight ahead, Head-up and say to yourself, “HA ms is the best “YOU” have.

Do “YOU” get it? Am I clear? It is okay to be scared, bewildered overwhelmed, BUT it is NEVER okay to surrender yourself and give up. It is never okay to hurt yourself, remember RULE 1. These Disease-Modifying Therapies (DMT) are not child's play. They are very serious medicines. Never believe that it is hopeless, that it is over for “YOU”. 20+ years and I can assure “YOU” it is NOT. NOT by a long shot. I know of a number of young women who have had children, a number who have met the love of their lives due to ms. A number also who are now married.

I will be honest with “YOU”. Till death do we part and in sickness or health does not mean what it used to. We do have a very high divorce rate. For a number of reasons, we do have a high divorce rate. Sometimes the spouses, that swore to be there are too weak to be there. Let them be weak, let them leave. “YOU” have a more important life to lead, job to face. “YOU” have RRms, and “YOU” must walk that journey, climb that mountain. “YOU” have more important things to face.

Learn and know your ms. It is yours. Face it and get to know it very well. Read the feel bad stories, there are many of them, BUT do not let them be your story. Do you tests, understand why and what they are for. “KEEP” records. Too much is always better than not enough. Who knows when one day “YOU’ might need to know something “YOU” did not know, ask and keep asking until “YOU” understand. “YOU” are never wrong to ask. I am not sure how much I have forgotten and as the years go by, how much I really do not know.

This is not an impossible illness. “YOU” CAN do this, let yourself everyday face RRms and carry on. Travel your journey, Live your long life. NEVER give up

Royce (your ms writer and Brother)

YOU my ms sibling are far stronger than you think

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RoyceNewton profile image
RoyceNewton
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3 Replies
twooldcrows profile image
twooldcrows

yes it has been a long journey but ha we have found lots of ways to face it ...always giving such fantastic works of getting on with life for it is out there just have to go and enjoy it ...love it ...it is how i deal with it ....just go and find life and live it ....take care and be safe while you are doing it ...don't get hurt but sometimes like me just not paying attention but having a lot of fun...full of laughter and smiles for all around you for they also may have something to deal with and feel as if it isn't going to keep going and with you smile and to ask if need any help may just make their day so much better and will make them smile also....love and happiness ...

Violonchelo profile image
Violonchelo

Although my question for you is other. Did you take paracetamol when you had the vaccines Covid?

RoyceNewton profile image
RoyceNewton in reply toViolonchelo

Yes, prior and coffee after. I was thirsty, Pfizer vaccine zero aide effects

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