would you rather?

[kwhompus]

Thinking back a few years(20) when I was informed I had PPMS I was eased into the symptoms that were yet to be experienced. Some were predictable some not so much, after all it is different and unique for each one of us. So I ask, would you rather be informed with some grace and understanding or bludgeoned with what could be your future?? I've noticed not everybody experiences the same effects so there may be no reason to worry . I would prefer not to be told "point blank" that my future is going to suck, but then have a nice day and keep a good attitude. they just don't go hand in hand.

[2littletime]

I saw 7 doctors before getting a diagnosis. One told me I would need a wheelchair soon. (That was 21 years ago and I'm still walking). I'm still seeing that 7th doctor. We are all different, & need the information explained so that we can understand & process. Let's enjoy the journey as best we can...👍💖

[Jesmcd2 CommunityAmbassador]

Really good question kwhompus . Except you have it right, no one has the same MS! Even you! So you don't know what your future holds! If you do... Can you give me the lottery numbers? 🙃This is my thing... Take today for today! Just be prepared for tomorrow.

Like 2littletime I was told many many yrs ago, after my 2nd back surgery, I would be in a wheelchair within 2 yrs. I'm still walking!

So, I suggest you keep a positive attitude and take today for today my friend!🤗💕🌠

[kwhompus in reply to Jesmcd2]

I like what your saying!

[falalalala]

Grace & understanding, of course.A doctor with empathy is a good thing.

They are not always accurate in their predictions anyway and they don't call it a practice for nothing.

[ahrogers]

I like knowing what the potential symptoms of relapse or progression are so I know when to report something new. That being said, I don't wake up every day looking for them. I try to enjoy the ability I have now knowing it can change any time. The future is uncertain for everyone and certainly for those with MS. We just have to learn to be flexible 😊

[TDonahue58]

I wish I knew then (first diagnosis), what I know now (Knowledge through research and networking).I'm on my second neurologist and just trying to stay ahead of the curve as they say.

[Oceandream]

I went thru several docs til I found the one that said there was no reason I couldn’t feel great and love a normal life. First one said this was the beginning of the end and that I should just get used to the symptoms and move on. New doc still hasn’t given up on helping me feel my best and luckily found a secondary diagnosis no one else looked for...it’s taken a couple years since being diagnosed but I’m showing some improvement now. For two years I had migraines at least half of the days each month, but only 4 days in the last 7 weeks. My cog-fog has improved and I feel more capable the hours I’m awake. I truly believe a positive attitude by us and our doctors can make all the difference in us living our best lives! Thanks for the post. I’m feeling grateful 😍

[mrsmike9]

Yeah. I don't want to be clobbered over the head with it. I have RRMS and was told so sweetly by a neuro. He looked so upset and gave me a hug when he left the room. Wish I still had that one but as he doesn't specialize in MS he referred me to the one I have now. The one who when he looks at me sees only the disease and not the person. So glad his NP is who I see and if she needs to talk to him, she can and I don't have to. But I am so glad that the 1st neuro was the one who told me.

[rjoneslaw]

the 1st dr told me I needed to start meds asap b4 anything happensthe 2nd dr advised me it was up to me but suggested I start meds but I didn't

fast forward I wish I had listened