Better days!: When the COVID 19 pandemic... - My MSAA Community

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Better days!

Tracelr profile image
5 Replies

When the COVID 19 pandemic (

Epidemic ) I quit taking me medication

As of March 2020

I feel much better No insomnia, no Brian fog

Not sitting around like a zombie I can actually have a good brain function clear headed

I actually feel normal in my head and except for my symptoms that I have a tremors and I can’t walk very well without a walker I don’t know I don’t seem to have any MS symptoms kind of odd isn’t it I was taking copaxone

Less MRI had in 2018 they said all my lesions were gone

I am taking absolutely no medication at all for multiple sclerosis all I can say is yay!

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Tracelr profile image
Tracelr
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LJMC profile image
LJMC

Each of us is different. The best course for each of us is to work with our doctors to find what DMT to use or not to use.

HensTooth profile image
HensTooth

I know there is a valiant effort made by everyone here to support each person’s right to make their own medical decisions. I also noticed that most people here advocate following a medical doctor’s advice, which is almost always taking DMTs (Disease Modifying Therapies aka pharmaceuticals). I also understand that it is extremely risky to advocate any treatments for MS that are not supported by the MS Society, peer-reviewed studies, and double-blind trials.

THAT HAVING BEEN SAID... I wanted to share that my own personal experience has been similar to the one shared by Tracelr — specifically, discontinuing the use of the injectable DMT Copaxone and feeling better by several orders of magnitude!

As another poster said, “to each his own”. I hope your own strategies are working for you!

Tracelr profile image
Tracelr

Thank you for sharing .My mistake for sharing my own experiences my intentions are not to change or make anybody changed there mind whatever people use their business not mine I’m just sharing I’ll be careful not to share any good prognosis in open public anymore!

HensTooth profile image
HensTooth

No, I hope you didn’t misunderstand me… I think it is fine to share your own personal experience and in fact I just did a post with my personal experience too. I am grateful that you shared your story.

mrsmike9 profile image
mrsmike9

I'm glad it's working for you. Are they sure you have MS since you have no lesions?

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