fatique ?

[kwhompus]

I am reading comments about fatigue and have realized that here may be some gray area on its effect on all of us. knowing it is different for each of us it seems to be a good time and place to tell us what it means to you. For me, I can begin my day with ambition and ability to do some needed chores only to tire to the point of having to sit down. By evening ,regardless if I've done anything or not during the day, I can barely stand or make it to bed. Please share your fatigue experience.

[Kenu]

I am pretty close to the same. I can have a great nights sleep and wake up tired. Once I get going I am ok and then around 6pm I am pretty much done ✅. Time to lay down flat rest my back as I am pooped. Doesn’t seem to matter much what I did during the day. Feel pretty lucky that I can still do what I can 🙏😜🤞😉 Ken 🐾🐾🐾🐾

[kdali]

Mine varies wildly depending on how much sleep I’ve had and at what month I am in relation to my ocrevus infusion.

[falalalala]

Mine comes on if I am overheated and if I stay up too late, I turn into a crabby baby.

🤣

I have learned to just take a seat & rest until I get some energy back.

[Lilac16]

I am at my best in the mornings, this is when I have to plan those things I "have" to get done. My energy usually dwindles as the day progresses. Most days in the 2-4 range ( I call my witching hours) I need to lay down or do something low key. I sometimes have a little bit of energy again in the evening, but much less than in the morning. That energy is usually spent finishing dinner, and then I am ready to sit and read or just chill.

The fatigue struggle has been tough for me to consistently exercise. I try to get in a walk or something...but some days that is just not going to happen!

[kwhompus in reply to Lilac16]

these are some very heart felt comments from those who responded. People tell us to paint on a happy face , but I say BS ! If we can't vent in this arena ,than where?

[ck722 in reply to kwhompus]

Although I am a PCa patient the Lupron Im on has caused unbelievable tiredness/fatigue all day. It is terrible to deal with.

[kwhompus in reply to ck722]

As I read these comments I wish I could help each one of us.

[kwhompus in reply to Lilac16]

I feel as if I had thought what you wrote. Its like a mirror image of my day. thanks for sharing.

[jimeka]

I have to rest after every activity. I get up, shower, rest in my chair and have breakfast. Wash the dishes and put the washer on, then sit in my chair and rest. Vacuum, rest, get lunch ready, rest, and that’s how it is the wholesale, nearly everyday. 😊

[kwhompus in reply to jimeka]

sounds sooo familiar, except when I sit to rest the phone rings and its too far away to answer. frustrating!!!

[rjoneslaw]

mine vary If I walk to long my legs starts to rebel against me either I cant lift my legs high enough to walk or my legs give out and I drop down to the floor if I dont find a seat in time. I shut down at around 2pm

[mm1527mm]

I tend to be fine and most energy in morning. Occasionally my legs will be achy and tired when I wake up by 3 i am tired and need to take a break and sit then same thing around 7pm. If i take a break or laydown and drink some water it helps me

[pamgarner]

i get up at 5 am. i have energy in am and 30min nap by 10am continue what i was doing and nap by 3pm bed by 7:30pm.It took my along time to realize that there are alot of things worse than have a disease that makes you sit and lie down :)i cannnot do house chores and leave house to do errands.one or the other.

[ck722]

My magic energy potion: One teaspoon of coffee, one of cacao and 1/16 teaspoon of stevia --hot- in a big mug seems to help me a lot. I also take a teaspoon of maca (yuk) in warm water chased with the above. Hope this makes a difference.

[kwhompus in reply to ck722]

all of the comments and insights have helped me understand that my tired, aching legs are not a unique problem but one we suffer and deal with daily. thanks for sharing.

[CrazyCatWom]

The first time I experienced MS fatigue (and yes, technically MS fatigue is different from non MS fatigue) was 25 years ago, and I wasn't even aware it was part of MS at the time. I was a writer back then. I'd be working on the computer and suddenly, I'd become so tired I couldn't even lift my hands off the computer! I'd have to sit, not moving for about a half hour to 1 hour before I could get back to normal. I'd recently been diagnosed with MS, but I didn't dare tell my neurologist about it. In fact, I didn't tell ANYONE about it, especially my partner. I just knew everyone would say I was just lazy. Besides suddenly going blind in my right eye, it was the most terrorfying thing. Over time, the fatigue got better for me, and I didn't really even know it had been my MS causing that until a couple of years ago. And then, only because I'd gone to see a talk my own neurologist was doing about MS, and he went indepth on MS fatigue--what it was and what caused it. So I finally knew what it was that had (and still does, less intensely, now); I no longer had to be embarrased to talk to others about it, and could even talk to my neurologist about it.

[kwhompus in reply to CrazyCatWom]

I'm glad you were able to open up and I hope ,get the helpful advice needed. MS and pride don't mix well

[nes78]

ms fatigue can't even be described. it's why i ended up on ssdi at 27/28. i could barely work and was beyond tired all the time. i'd fall asleep standing up and wake up when i hit the ground. anywhere i sat (including the toilet) i'd fall asleep. it was totally disabling. i thought i was narcoleptic. it's the ms.

[kwhompus in reply to nes78]

I'm sorry you had to quit working. I was 50 years old when I went on ssdi. and that's when I realized how important it is to have a mission ahead of us each day. The fatigue is overwhelming at times,but compromise with it we must. thanks for sharing.

[mrsmike9]

I get up tired. If it's a work day I drag myself there and fake it until my 5 hours are over. If I sit when I get home it is extremely difficult to do more. About half the time I make myself get up and do something but it's tough.

I'm writing this on Saturday. I got up showered, had breakfast and brushed my teeth. Started a load of laundry and made a shopping list. It is noon and here I sit.....

[lbenmaor]

I've learned that taking 600 mgs. of Alpha Lipoic Acidhelps my fatigue.

If you try it let me know how it goes,

Best Wishes,

Leslie

[Tulip77]

I am better in the morning. Mid afternoon is when I start crashing. If I can sit and be quiet fir 20-30 mins., then I seem to start feeling better. I seem to get a second wind later in the evening. Ironically, since COVID, I am having a very hard time settling my brain down to go to sleep which is not normal for me.