THANKS FOR THE ADVICE ON OCREVUS

[Sukie427]

I just want to thank everyone for their posts on their Ocrevus experience. I was dx'ed with SPMS in April but could not start the Ocrevus until August because of COVID. I was terrified. But after reading the posts, I felt very reassured. I did massive research into all the new meds for SPMS, and with the help of my brother who is a retired pharmacist, two friends who are a breast surgeon and an oncologist, respectively, and my former MS neurologist who is back in Florida where I came from and who has a tremendous amount of experience with MS (my current neuro is only 33, and while he is totally knowledgeable and competent he's still younger than my kids and I believe in the wisdom gained by experience), I decided to follow my neuro's advice and go with Ocrevus. I am very sensitive to meds so the only problem I had was the rate of infusion. But when they slowed it down it was fine. No side effects, and I actually started getting much stronger with the PT, the daily horseback riding and other exercise. I was able to ditch the walker and go back to a cane, and sometimes I could even walk short distances with no aids at all! Then, in October I did what I do best and fell, breaking my foot in 4 places. I had surgery and am almost recovered. Can't wait until I lose this klunky walking boot and get back to my life! So thankful for the shared experiences of all of you in helping me to make this very important decision~!!

[jimeka]

Great to see you back and it is good and encouraging to read of your experience with Ocrevus but HOW do you do it? Break your foot, I am so sorry. You just seem to turn a corner and something happens. How is your hubby doing? Hugs 🤗

[Sukie427 in reply to jimeka]

Well, I was carrying my saddle and bridle out of the tack room and some pea brain left an obstruction in the pathway so naturally I fell over it! A friend helped me up, I saddled up and rode for 2 hours! When I finished, my foot had swelled up and turned every color of the rainbow! So I hurried and got my boot off before it could swell any more. Thank goodness everyone is doing well. I've missed you, my friend. And as I am sure you've figured out by now, we've had to postpone our trip to your part of the world until 2022. 😔 But the Yanks are comin'!!!! Hugs back!🥰🥰 You and yours stay safe and well! 😷

[pamgarner]

that's why I love this group of fine people

[Sukie427 in reply to pamgarner]

😅’cuz we’re all 🥜!!!

[twooldcrows]

so sorry about your fall ...wow ...take care and be safe....

[Sukie427 in reply to twooldcrows]

Thank you twooldcrows ! Stay well and safe!

[Krista78]

Thank you for sharing! Im newly diagnosed with MS and awaiting insurance approval to start Ovrevus hopefully in late Dec. Starting it during this pandemic scares the heck out of me (on too of the weight of it all) and hope I don't have terrible side effects.

[Sukie427]

I was told last April that I had to start OCREVUS but because of the pandemic I could not start until August. I was more scared of the drug than the pandemic. But I did start it and I honestly started to feel stronger and better. And it didn’t tank my immune system, either! So we have been wearing masks and socially distancing and although it’s certainly far from normal, life is quite tolerable. I am on Medicare and the doctor took care of all the paperwork so I didn’t have any problem. I agree with you that it’s scary but I hope that you will be pleasantly surprised. Best of luck!😊