Savitex

[Mermaidia11]

I’m in Uk and have a Savitex question for you

So I’ve asked my GP in writing for some Savitex-he said that this is hospital prescribed only, so I wrote to my neurologist, who said it wasn’t available to prescribe at her hospital - (the northern neurological centre of excellence)

I’m perturbed.I thought this had been approved for MS patients in the UK?

I have had Savitex paste, made by a guru type person at great expense... it was the first bit of relief I had had for years... but I can’t afford to keep buying it privately from someone who essentially is a drug dealer..

And wtf should I, when this is purported to be available and other patients can get much stronger, much more expensive toxic drugs ....( and they are encouraged..! )

SAVITEX is very much cheaper and has the power to alleviate the ball ache of MS, calm everything down and gives you a brilliant nights sleep...(unlike the will they/won’t they work toxic ‘treatments’ that offer no relief and come with a suitcase of issues)

So I ask you, in the UK (and around the world)

1. What country are you from?

2. Is Savitex allegedly available on prescription in your country?

3. Have you ever tried to get a prescription?

4. What happened?

I realise that this is mainly applicable to Uk residents, but I just wondered if it was available anywhere else in the world, or had anyone else tried it?

I’m going to write a group letter with regards to this (NICE/parliament etc as you do) - so please let me know your thoughts and observations.

I’m not on faceplant, twirker, insta or any of that - hence why I am asking here.

There’s what ? Over 300 local authorities in the Uk , so any of them making it available to pwMS?

All observations gratefully received. Thank you x

[Tinker-Belle]

I had never heard of this. I’d sure like to try it for my spasticity! I’m going to ask my doctor about it.

[Frances_B in reply to Tinker-Belle]

Just spell it correctly if your write it down anywhere or send an e-mail t your Doc about it - the T comes before the V the brand name of the drug is drawn from the name of the plant - Cannabis sativa

en.wikipedia.org/wiki/Nabix...

[Mermaidia11 in reply to Frances_B]

Yes it would be so easy to confuse it for something else.....

- thanks for pointing that out @francesB- it’s SATIVEX (nabiximols) not Savitex;

My auto correct spelt it that way, and I just wondered if anyone had procured a prescription; but clearly not!

[Frances_B in reply to Mermaidia11]

Mermaidia11 - sorry - I did't mean to sound like I was having a go at you - but I can see how it might have come across that way. Autocorrect and predictive text have an awful lot to answer for - I won't disclose here some of the things that get suggested for words that I mis-type. Sometimes my very stupid smartphone changes things without asking me and turns a simple text into a mystery quiz and some of what autocorrect changes normal but misspelt words to could be quite embarrassing if I didn't pick them up and change them

[Amore55]

Interesting...never heard of it. Please keep us posted how you get on. Sounds amazing. Hope you are doing okay, my friend. Sending you some love across the pond! Kelly xx

[Mermaidia11 in reply to Amore55]

Ah thanks Kelly that was a lovely message, as was Frances_B ! Thanks guys and thank you for being so lovely to my befuddled self

I’m on the struggle bus because of a fierce shakey hand , insane spasms and being able to stand for all of 5 seconds - even after all the clean living and excercising zzzz how are you doing ?

yes the auto correct is a nuisance and I’ve sent many a dodgy comms, then read back and thought er *$#% oops

I’m perturbed that something so helpful is restricted in Blighty where any cannabis is restricted (neigh illegal) and the Sativex strain is helpful and purported to be available on prescription here...

But you can’t beat someone who won’t give up eh?!

[Jessie70]

I had to read a few replies to realize marijuana!! I’m in Chicago, Illinois. Weed is legal here. The two strains that I know of is Sativa and Indica. Weed definitely helps but you build up a tolerance, well I did. I’m now prescribed Methadone. I was told I could build a tolerance to this too. I prefer the Methadone because insurance covers the script. I was also told not to tell people that I take this narcotic. I believe it gets a bad response as people think of heroin. I hope I spelled that correctly. FYI sativa is more of a “up” high. The joke is indacouch for Indica. Also, do not waste your money on CBD. I believe it can be helpful but not for people with extreme issues. Anxiety, sure! CBD helps. The next time you see your drug dealer ask about Indica. I believe you will be pleasantly surprised. Honestly, even though it’s legal here everyone has a “guy” it’s cheaper than the dispensary. Hope this helps and feeling better soon.