This could be your lucky day!: Take... - My MSAA Community

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This could be your lucky day!

1RiskyRich profile image
12 Replies

Take advantage. This treatment cost me over $50k in 2016.

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1RiskyRich profile image
1RiskyRich
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12 Replies
greaterexp profile image
greaterexp

How are you doing now?

1RiskyRich profile image
1RiskyRich in reply togreaterexp

Health wise I’m doing good, thanks. Bored of the staying home stuff. How are you making out?

greaterexp profile image
greaterexp in reply to1RiskyRich

We are doing well. Thanks for asking.

jimeka profile image
jimeka

Good to hear from you, it’s been a while. How are you and did the treatment work? Is it still working? Many questions I know but not many people on here have had stem cell so if you would share a bit about it, I would appreciate it, as I am sure others would, thank you, Blessings Jimeka 😊

rjoneslaw profile image
rjoneslaw in reply tojimeka

Thanks jimeka I was going to ask the same questions.

Also how long did it take for you to bounce back

1RiskyRich profile image
1RiskyRich in reply torjoneslaw

Hi. I was in PT in 2 months but I was careful. My immune system took 10 more moths to totally bounce back to normal. I got a few CBC drawn to make sure all my counts were at a normal range. Safe range was at about 6/7 months. Normal rage was at 10 months.

1RiskyRich profile image
1RiskyRich in reply tojimeka

Hello. The treatment has been doing what it has set outride. It’s been a little over4 years now and I think all the improvements I would see have already come. The top 3 are 1! No more fatigue 2) no more heat issues 2) no more brain fog. There’s been other smaller improvements like swallowing and bathroom urgency. The treatment has been my best decision since being diagnosed. I’ve been able to stand and clap at both kids college graduations. I am back to driving again. My wife & I have opened up a real estate investing company (Door Step Assets, LLC. follow us on Facebook), we have moved from New Jersey to Texas (long story there). My HSCT Journey page is on Facebook under Richie’s MS Journey. Those are the highlights. Unfortunately, my balance is a lot better but I am still slightly off balance & it takes a while to focus on smaller print. Like the time on the microwave from another room. Those are the pros & cons. Any specific question just ask.

jimeka profile image
jimeka in reply to1RiskyRich

You have had some positive outcomes. That’s really good news. I hope some members on here can take advantage of the trials, as it is something that many of us question. Unfortunately I have PPMS and over 60 and live in the U.K. so it’s out of the question. Don’t be a stranger, keep in touch. Blessings Jimeka 😊

kdali profile image
kdali

Hey stranger!!! 🥳 How’s the heat? How are you getting on? Don’t leave us hanging, you’re the only stem cell champ we know 😵😂

1RiskyRich profile image
1RiskyRich in reply tokdali

The heat is no longer an issue. I since moved to Texas.

kdali profile image
kdali

Ty for the share! Looks like it’s going to be the most exciting study we have seen in a long time! Anyone with one relapse per year or more should check it out. (Is anyone here that active on treatment 🤔)

pamgarner profile image
pamgarner

the dr. told me with the all the drugs, the treatment with the most promise.is the stem cell if you can afford it

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