What's your support system? Do you have one? We talk Alot about how we lose friends and family sometimes, they just doesn't understand. It's not always their fault. MS is hard to understand, even for us. But we need support!
So, where do you get yours?
🤗💕
J🌠
PS Please don't forget you can always call MSAA Toll-Free Helpline (800) 532-7667 ext. 154 for support also!
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Jesmcd2
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I have my family, my dog , Jack (it was Sadie for 15 years) & my Bible study group. But I have to say my best support is Jesus. He keeps me grounded & out of self pity on those bad days .🤓
It breaks my heart to read about so many people who have little or no support. I have great family who try to be supportive. I have one friend who does not have MS, but she's a train wreck health-wise with many of the symptoms I have. She's my best face-to-face support.
This group has been my best MS support ever since I got the diagnosis. You all are the BEST!
Just my husband...he tries to understand, but doesn't quite get it. I talk to my sister on the phone daily (sometimes multiple times). She has health issues too, so we help each other as much as possible.
I have my wonderful and tolerant wife of 37 years keeping an eye on me, and telling me, or independently telling my Neuro I'm having problems. Yes, we married a week out of high school at the age of 18... no kids by our own wishes. We have 3 Boxer dogs, one is as tame as can be, the middle one has mostly good moments, and then of course, the youngest is still psychotic!
I have also been working from home for the last six months, but have for the past ten years had difficulty paying attention to details and remembering. My boss is helping me and wants me to succeed, as he knows if I leave or am let go, I will not be replaced. I consider him a very good friend, even if my employment ends, we will still be friends.
My sister in Germany calls every other week to see if any more money has been released from my mother's estate. She is funny, she tries to understand my situation, but her own financial well being is more important. Yes, family can be a fickle thing!
I also have a few friends that want to come over and help me put the 65 Ford Thunderbird back together, but Corona has us all scared to death! BTW, I have tested positive twice for Covid 19 but have had zero medical side effects from it. Now I show that I have the anti-body, but no longer have the virus! Go figure, a high risk person walking away without the proverbial scratch! No, my tough as nails wife didn't catch it!
I have finally made some very good friends here, they have become my fun times. But most of all my kids, grandkids and this forum are my support system. To be honest, you are mostly my support, because you understand. It is so difficult to convey how MS is to live with to anyone else. Thanks to all of you! Love, Kelly
You are so right because the people in this forum are the Only ones that understand , not my boyfriend , best friend ( who's in great health ) , not my first cousins , not anyone.
This site with all of you are my support system. I am married with adult kids (talk about an oxymoron). But none of them I can talk to. They don't roll their eyes but inside they are.
Ah yes, nowadays the news is raw Op Ed with no data. If I am having a seriously awesome day and feel I don't deserve it for some reason, I just turn on the news for 5 minutes. Depression follows quickly.
My only child, daughter, she is my life line. I live with my daughter and she is amazing; always looking out for me as things progress, always pays attention and is aware of new struggles. She has her hands full with 3 young kids, a husband and me, plus fur babies. But she is my daily rock along with my faith and God.
I have a number of siblings who would come if I truly needed them, but they really don't understand MS. I have a handful of good friends, again would be there if truly needed them, but really do not understand or try to understand MS.
I have cousin who has a great number of health issues, we are each others release buddies. We event to each other, we scream, we laugh, we cry, and we fight our illnesses.
My Real "support" system may be small, but we are mighty and God is mighty. I am blessed.
Sorry about that. I understand. I have no kids or siblings either. Sometimes I can't talk to my husband about MS cause he doesn't have it. So being able to communicate thru this group has helped me. Hang in there. 👍🌞
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