Question of the week!: What's your support... - My MSAA Community

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Question of the week!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
27 Replies

What's your support system? Do you have one? We talk Alot about how we lose friends and family sometimes, they just doesn't understand. It's not always their fault. MS is hard to understand, even for us. But we need support!

So, where do you get yours?

🤗💕

J🌠

PS Please don't forget you can always call MSAA Toll-Free Helpline (800) 532-7667 ext. 154 for support also!

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Jesmcd2 profile image
Jesmcd2
CommunityAmbassador
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27 Replies
hairbrain4 profile image
hairbrain4

I have my family, my dog , Jack (it was Sadie for 15 years) & my Bible study group. But I have to say my best support is Jesus. He keeps me grounded & out of self pity on those bad days .🤓

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply tohairbrain4

AMEN 🙏

God bless you hairbrain4🙏🙏🙏

❤Lisa💕

carolek572 profile image
carolek572CommunityAmbassador

My immediate family ~ husband and daughters. That's about it :-D

kdali profile image
kdali

Immediate family and 2 friends. I have others I could reach out to, but I don’t keep up with them as it is.

greaterexp profile image
greaterexp

It breaks my heart to read about so many people who have little or no support. I have great family who try to be supportive. I have one friend who does not have MS, but she's a train wreck health-wise with many of the symptoms I have. She's my best face-to-face support.

This group has been my best MS support ever since I got the diagnosis. You all are the BEST!

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply togreaterexp

So are YOU & everyone on this site!

God bless you, greaterexp🙏

❤Lisa💕

2littletime profile image
2littletime

Just my husband...he tries to understand, but doesn't quite get it. I talk to my sister on the phone daily (sometimes multiple times). She has health issues too, so we help each other as much as possible.

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply to2littletime

Nobody understands - unless THEY have MS too.

I've had MS , most of my life, probably since I was 20yrs old..

I'm 52 now....

God bless you🙏

❤Lisa💕

daveh121 profile image
daveh121

I am glad people have family and friends to help. Along with various groups.

It would be hard to go it alone.

For me it is the above mentioned.

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply todaveh121

You're NEVER ALONE here or with JESUS in your life.

Unfortunately, I can't go to church anymore( covid & all)

God bless🙏

❤Lisa💕

jorrell profile image
jorrell

I have my wonderful and tolerant wife of 37 years keeping an eye on me, and telling me, or independently telling my Neuro I'm having problems. Yes, we married a week out of high school at the age of 18... no kids by our own wishes. We have 3 Boxer dogs, one is as tame as can be, the middle one has mostly good moments, and then of course, the youngest is still psychotic!

I have also been working from home for the last six months, but have for the past ten years had difficulty paying attention to details and remembering. My boss is helping me and wants me to succeed, as he knows if I leave or am let go, I will not be replaced. I consider him a very good friend, even if my employment ends, we will still be friends.

My sister in Germany calls every other week to see if any more money has been released from my mother's estate. She is funny, she tries to understand my situation, but her own financial well being is more important. Yes, family can be a fickle thing!

I also have a few friends that want to come over and help me put the 65 Ford Thunderbird back together, but Corona has us all scared to death! BTW, I have tested positive twice for Covid 19 but have had zero medical side effects from it. Now I show that I have the anti-body, but no longer have the virus! Go figure, a high risk person walking away without the proverbial scratch! No, my tough as nails wife didn't catch it!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tojorrell

WOW jorrell !! That's wonderful news about the covid. Ok that just plan sounds weird! I'm so glad your wife didn't get it! That you all are well!🤗💕🌠

jorrell profile image
jorrell in reply toJesmcd2

Actually, I read a nout yet released study that is showing they have found a good. 5K people with positive markers for covid and no symptoms.

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply tojorrell

Hi jortell😊

As was already stated, WOW! You should submit to be tested , to see if YOU have the CURE A

in reply tojorrell

You sound like a very interesting person and great story teller—

Thanks for sharing and great new about the virus!!!👍

goatgal profile image
goatgal

This lovely forum family is my support system.

Amore55 profile image
Amore55

I have finally made some very good friends here, they have become my fun times. But most of all my kids, grandkids and this forum are my support system. To be honest, you are mostly my support, because you understand. It is so difficult to convey how MS is to live with to anyone else. Thanks to all of you! Love, Kelly

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply toAmore55

Hi Kelly😊

You are so right because the people in this forum are the Only ones that understand , not my boyfriend , best friend ( who's in great health ) , not my first cousins , not anyone.

So therefore, I'm so grateful for all of you😊

❤Lisa💕

mrsmike9 profile image
mrsmike9

This site with all of you are my support system. I am married with adult kids (talk about an oxymoron). But none of them I can talk to. They don't roll their eyes but inside they are.

in reply tomrsmike9

I have two sons!!

I hear mrs mike

My young son, is 24 and a kool aid drinker

We chat, but not anything in the news these days....

jorrell profile image
jorrell in reply to

Ah yes, nowadays the news is raw Op Ed with no data. If I am having a seriously awesome day and feel I don't deserve it for some reason, I just turn on the news for 5 minutes. Depression follows quickly.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tojorrell

Everyone deserves an awesome day jorrell ! We take them when we get them! 🤗💕🌠

Smithnova profile image
Smithnova

My only child, daughter, she is my life line. I live with my daughter and she is amazing; always looking out for me as things progress, always pays attention and is aware of new struggles. She has her hands full with 3 young kids, a husband and me, plus fur babies. But she is my daily rock along with my faith and God.

I have a number of siblings who would come if I truly needed them, but they really don't understand MS. I have a handful of good friends, again would be there if truly needed them, but really do not understand or try to understand MS.

I have cousin who has a great number of health issues, we are each others release buddies. We event to each other, we scream, we laugh, we cry, and we fight our illnesses.

My Real "support" system may be small, but we are mighty and God is mighty. I am blessed.

Cutefreckles72 profile image
Cutefreckles72

My husband has been my support system since I was diagnosed. And this group. I have learned a lot from everyone. Thank you.

Sweetheartonvdayl profile image
Sweetheartonvdayl in reply toCutefreckles72

Hi Cutefreckles72😊

Unfortunately, my husband didn't understand , therefore were no longer together. I have no siblings or kids.

But I have many good people in my life, so I'm very fortunate🙏

❤Lisa💕

Cutefreckles72 profile image
Cutefreckles72

Hi Sweetheartonvdayl

Sorry about that. I understand. I have no kids or siblings either. Sometimes I can't talk to my husband about MS cause he doesn't have it. So being able to communicate thru this group has helped me. Hang in there. 👍🌞

Midgey_Midge06 profile image
Midgey_Midge06

I have my husband who takes good care of me. He sometimes forgets all of my difficulties by let him slide on that cuz he tries.

And i have my best friend of 20 years. We support each other thru a LOT. And an ms friend i met on another forum.

But the best support is from here. Cuz every one is so positive and up beat

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