Teeth lose and low self esteem - My MSAA Community

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Teeth lose and low self esteem

MzShenese profile image
MzShenese
β€’34 Replies

I have also been loosing tooth. I have been doing research on it since i started loosing them. Its from the ms and a disease caused by ms called trigeminal neuralia. Well could be the case for some. I have facial swelling, mouth pain, bleeding gums, eye pain, ear aches, jaw and cheek pain, etc nerve pain. Rather we brush and floss like we should theh gone fall out. Loosing my teeth has my self esteem so low alone with the ms itself not being able to do for my self having to depend on others. I just lost one of my front teeth the other day it feels so weird i already hate smiling now i dont even want to talk. πŸ€¦πŸ½β€β™€οΈπŸ˜”

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MzShenese profile image
MzShenese
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34 Replies
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rjoneslaw profile image
rjoneslaw

Sorry to heard what is happening to you

MzShenese profile image
MzSheneseβ€’ in reply torjoneslaw

Thanx

greaterexp profile image
greaterexp

I'm sorry to hear this. What does your dentist say? I haven't heard of trigeminal neuralgia causing tooth loss directly , but can't imagine how difficult it must be to perform basic oral hygiene. I hope you have something to help with the pain.

MzShenese profile image
MzSheneseβ€’ in reply togreaterexp

I don't have dental insurance just health insurancd and I haven't even been approved for disability and it's been 2 years and 4 days since I was diagnosed they keep denying me but I'm not giving up.

greaterexp profile image
greaterexpβ€’ in reply toMzShenese

It may be worth looking into getting a lawyer who will represent you at no or low cost so you can get the disability.

MzShenese profile image
MzSheneseβ€’ in reply togreaterexp

I have a new lawyer now my last one was worthless

greaterexp profile image
greaterexpβ€’ in reply toMzShenese

I'm so glad you got a new lawyer to represent you. Even when looking for lawyers, we have to be our advocates, it seems.

Please keep us updated about how you're feeling and about the disability process.

MzShenese profile image
MzSheneseβ€’ in reply togreaterexp

Will do thanx

Frances_B profile image
Frances_Bβ€’ in reply togreaterexp

greaterexp - you are correct - trigeminal neuralgia does not cause teeth to fall out - it is a nerve related condition. It also has nothing to do with tooth abscesses which could result in losing teeth. It also doesn't cause swelling or bleeding gums and the attention of a dentist is definitely required to address other causes of these symptoms and tooth loss.

MzShenese profile image
MzSheneseβ€’ in reply toFrances_B

Thanx

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi and welcome MzShenese plz don't ever lose your voice,I'm sure it's beautiful!

MS is a challenge, and having the extra pain on top I'm sure doesn't help.

See your dentist like greaterexp said or your neuro to get help!! πŸ€—πŸ’•πŸŒ 

MzShenese profile image
MzShenese

Thank you I won't loose my voice ms has gave me so much strength. So many days I want to cry but the tears just wont fall. Im doing my best to control what I can't change. It's not easy but I'm living and doing good I've even lost my best friend of 20yrs. No she didn't die she just stopped being my friend why idk. Not sure if she could handle or deal with the ms. But it hurt but i found strength to get through it and move on.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toMzShenese

There are many many days that we cry here, or laugh, or vent and learn with each other!

The one thing that we always are, are your friend! So have no fear! Your in the right place MzShenese ! Sometimes family and friends don't know how to handle it when they here you have MS. They think it's the end of the world. Just continue to show them it's not. ☺️

Sure MS is a ride like no other 😐 and every day is different. BUT.. Every day is different!☺️ πŸ€—πŸ’•πŸŒ 

MzShenese profile image
MzSheneseβ€’ in reply toJesmcd2

Thanx for the encouragement im glad to here and around ppl who can relate cause it so hard being around family friends now trying to explain an tell them how you feeling or what you going through explain #ms altogether its all like talkinf to strangers instead of ppl you being knowing your whole life half your life or for years and you not the same person no more you can deal with the everyday thing like you used to but yet they insist and you you can til they see the tears the hurt pain and you bout to damn near pass out.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toMzShenese

Well #1 you should not be doing so much that you pass out, or all most pass out! You need to start putting yourself and your health 1st! It's the only way to have i fight in this race. ☺️

Fatigue is a HUGH deal with MS! And your in Mississippi? Hot and humid doesn't help! Do you have a cooling vest? πŸ€” They help a ton!

And learn to say NO! No I can't help you today, or tomorrow or next yr! 🀣 You can help me tho! 😁

Saying no, isn't a bad thing. It's what we have to do sometimes!πŸ€—πŸ’•πŸŒ 

MzShenese profile image
MzSheneseβ€’ in reply toJesmcd2

Oh i dont do nothing i sit around in my room im meant it in other terms that thet would have to see all that to actually see how bad ms is my brain lost the sense to use my words correct and come out how i meant from having a stroke and so many seizures back to back i had like 200 in 1 weekend. I deal depression very bad too i dont say no or yes i dont say nothing half the time dont or cant even think my mind be elsewhere in my own world most times.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toMzShenese

I truly hope your under a Dr's care for your depression MzShenese that's not something to mess with!

I'm so sorry about your stroke and seizures.πŸ™

The thing is, family and friends might never get it. They can't fix it, or make you better. And that can make them feel helpless or scared or something. If they ask, just give short answers. Unless they want more.

And you always have us! πŸ€—πŸ’•πŸŒ 

MzShenese profile image
MzSheneseβ€’ in reply toJesmcd2

Thanx I have a councilor and a medical doctor and most times I stay to myself and when I do talk I just nod and I do give short answers cause I got tired of trying to explain wh

MzShenese profile image
MzSheneseβ€’ in reply toMzShenese

What they can't and won't understand

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Sorry for all you are going through. Definitely see you dentist and Neuro.. There might be some financial help through MSAA.. Check their site. Also you might be having some kind of reaction to a medication. Check that out with your pharmacist or doctor.

MzShenese profile image
MzSheneseβ€’ in reply toCalfeeChick

Thank you and i have talked to my doc and my neurologist they have did tests i have even had seizures its none to do with no meds its just the ms itself everybody symptoms are different i constantly research as well. But no money for a dentist. And i will check msaa. Thanks

greaterexp profile image
greaterexpβ€’ in reply toMzShenese

My father-in-law is a retired dentist. He used to work in a low-income clinic in his time off from his practice. It may be good to see if there is such a thing in your area. I sure hope there is.

MzShenese profile image
MzSheneseβ€’ in reply togreaterexp

Its not in this part of mississippi i stay in ima keep trying to look or try to get assistance cause i have no income besides help from my mom and sis and the state insurance i get

Pepp1313 profile image
Pepp1313β€’ in reply toMzShenese

There are a few assistance funds you can apply to to get money for insurance premiums, prescriptions, and even transportation to get an infusion. Try The Assistance Fund, Healthwell Foundation, PAN Foundation, etc. MS Society has more resources.

MzShenese profile image
MzSheneseβ€’ in reply toPepp1313

Thanx and I don't know where to look on the mssa site

Amore55 profile image
Amore55

Thank you for your post. I have been having terrible pain in my jaw bone for the last month. I thought something was wrong with a tooth. Went to my dentist, nothing wrong. I guess it is what you described. It is sooo painful. I have been putting cbd cream on it, as nothing else helped. It actually helps! I am very careful not to get it close to my eyes, it is my lower jaw. Just excruciating! I am so sorry for your situation, maybe it would help you. It is a little pricey, and you really have to rub the tiniest amount in, for over a minute, but worth it. It helps everywhere. Many prayers, Kelly

MzShenese profile image
MzSheneseβ€’ in reply toAmore55

Thanx when i can afford it i will try it

jackiesj profile image
jackiesj

Im sorry to hear of how life has been.It sure isnt easy but hang in there...we are all here.I have another friend that has sjorgrens that also does the teeth thing.Sometimes vitamin defiencies can be checked by the doctor.best wishes!

MzShenese profile image
MzSheneseβ€’ in reply tojackiesj

Thanx when i go see my doc i will have her check into it

4myms profile image
4myms

I’m sorry you’re going through this. I’m sending you positive energy and a giant air hug πŸ€—

MzShenese profile image
MzShenese

ThanxπŸ€—πŸ˜˜

mrsmike9 profile image
mrsmike9

Have you gone to your dentist? I am particularly feeling your pain now...literally. I had a tooth break root to front and it had to come out (in 2 pcs.). I had oral surgery last Friday morning to have my sinus cavity on that side "lifted" so an implant will be able to be put in. My cheek is swollen and sore.

I am like you in that my teeth are important for my "look". I, too, would be embarrassed to have missing teeth which is why I'm putting myself through this. See what your dentist has to say. Perhaps you will need to get dentures. Those will take some getting used to but once done, you will feel better about your appearance.

My best thoughts heading your way. This is not an easy time. My heart goes out to you.

MzShenese profile image
MzShenese

Thanx and I don't have dental insurance or money for a dentist.πŸ˜”

newbie1956 profile image
newbie1956

Hello MzShenenese,

I'm just now reading this and can relate to a lot of the same issues.

Hopefully by now you may have some answers to your difficult situation.

I have friends w/ the conditions you've mentioned. MS & trigeminal neuralgia .

They're models of endurance to me because I suffer with anxiety & depression

and I've also lost most of my teeth.

When I think about all they cope with (as many others do) I feel blessed.

A great example is found in the bible. (You probably know this)

The man Job! His integrity was unique.

Like us the man was imperfect. He made mistakes. However GOD loved Job

for his integrity. (Satan had already taunted GOD about human integrity.)

That man’s life course exposed Satan as a liar! Satan demanded that Job’s

integrity be put to the test. GOD trusted Job & He allowed Satan to test him.

It was very difficult for Job...but the outcome was very good.

This has inspired me to pray about things I can't control.πŸ™There are many.

I'd love to follow you & hope to learn about any progress you've made.

Sincerely ☺️

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