MS and Pain: I've been diagnosed with MS... - My MSAA Community

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MS and Pain

MsGelfling1 profile image
5 Replies

I've been diagnosed with MS since 2003. I've had it longer than that. I've had pain with MS for a long time but no one will address it. Some days, my knee on my right leg hurts so bad I'm sure I fell and broke it. Why do doctors think we are lying about having pain? Can we only hope one day the doctors will have pain ten times worse and no one will address their concerns? I sure hope so.

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MsGelfling1 profile image
MsGelfling1
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5 Replies
jimeka profile image
jimeka

Pain, no one understands it until they experience it. Childbirth pain was bad enough, but the seething hot pain you get with ms, takes the biscuit. Blessings Jimeka 🦋 🍫

ssdw1958 profile image
ssdw1958

I was diagnosed in 2004 only because I had to push it and had to ask how do I find out if I have MS or Lyme disease, I have MS. I always say that I’m ticked off that doctor never listen to me. For years but I need you to know I never would wish this disease on any one.

I just would like these doctors would listen 👂

greaterexp profile image
greaterexp

The current opioid crisis has everyone assuming that anyone who complains of pain is a potential drug seeker. I understand the reticence to prescribe, but it seems as though the pendulum has swung a little too far the other way from overprescribing.

I sure hope you get some relief. We have so many tools, but we should use them.

Kenu profile image
Kenu in reply to greaterexp

Totally agree 👍🙏🐾. Ken

MS_Indestructible profile image
MS_Indestructible in reply to greaterexp

I too agree. I've been able to cut down on my percocet due to using the THC pill but I still need the percocet.

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