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Helping your self

52mags profile image
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Hi all not posted for some time I was diagnosed 30 years ago at the age of 35 it’s been a long rd not always a good one but with all the symptoms and calling my legs and hands a 4 letter word on to many occasions hahaha I recently started on CBD oil as I have recently been diagnosed with small cell lung cancer and most of my MS symptoms have disappeared living no spasms no cramps no nerve pains but in the uk they tell you can get the CBD oil but you try it in Manchester so my advice to anyone who cannot get it is do your research and and get from a trustworthy site and for anyone interested Netherlands’s have a drug for MS called( sativex )that is cannabis based again not for us in uk but good look to all who can get it hopefully the government will do something to help us some day but am not holding my breath good luck all 🍀🍀🍀

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52mags
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Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi 52mags it has been awhile😊 Happy to hear you found something that works for you. 😀 As you said being in the US, there are some states, like mine, still playing catch up as far as CBD goes. People I wish they would prescribe it.😁🤣 make my life easier,!🤣 and get me off half the meds I'm on.😕

Jes 🌠

52mags profile image
52mags in reply to Jesmcd2

Hi jesmcd2 love the CBD the only tablet I take now is pregabalin zentiva and that’s because it helps me get a good nights sleep 💤 and your not getting sleeping tablets in uk 🇬🇧 3 a month good look 👀🍀🍀🍀

greaterexp profile image
greaterexp

I'm so glad you're back, but so sorry to hear about the cancer. How are you feeling? I hope you stay in touch and let everyone know how you are.

52mags profile image
52mags

I will do as having MS I think we forget about other problems and me I think I made it an excuse to smoke as much as I liked telling myself you cannot throw any more at me even after I was given pseudomonas and cellulitis and boy when someone been throwing I always seem to be the one thats stood in the way but at moment I am fine living in the UK 🇬🇧 doctors don’t seem to be taking it as serious as I would like due to the MS and cellulitis 👋 ttfn

jimeka profile image
jimeka

52mags hi, fellow Brit. First of all sorry about the lung diagnosis. You have obviously have some great experience of ms, having had it that long. I asked my neurologist in Hull about the use of cannabis, she told me that I can get it on prescription but she won't prescribe it for me, as I am not bad enough yet. So maybe ask your doctor. As for the cellulitis. If you know of anything that helps. My husband has been on antibiotics for 4 months, and as soon as he has finished the course, it comes back again. The doctors just keep telling him to loose weight, but he can't loose it fast enough. He now has blisters on his feet and he has been told to rest it, but it's hard when you work. God bless Jimeka 🦋

52mags profile image
52mags

Hi jimeka I know how your husband feels the doc and nurses tell you to keep your feet up with having the hospital bed I feel like a bat most days and like you’re husband a have spent most of the last 5 years on antibiotics they don’t seem to work but last time I went to outpatient I was told I had a fungal infection between my toes that carry’s the staphylococcus infection so when nurses doing my dressing it’s getting reinfected this might not be a problem in your husbands case but worth asking about and if he does then need to clear that up 1st but most of the time nurses using steroid cream that stops the leakage for a time but can only spend so much time paying bat hope this helps 🍀🍀

52mags profile image
52mags

About the CBD oil I have tried lots of times to get it but NO maybe it’s a post code thing I just know over the years I must have tried 5 or 6 times and got nowhere I think I said in my last post I am using the medipen if you look for it you won’t find it till after 9pm for some reason some one takes down the site every day and some one replaces it at night have a good look at the information lots of magazines telling you about the trails it’s been used on plus I like the fact that it says at 20% cannabinol it’s the strongest to be used in our country legally and although it looks like a lot of money 💰 there is a telephone 📞 number to ring for any ???? I spent a lot on it because of the cancer I bought the 20 you will all so get a discount on it I have been using from 17-1-18 so it’s been a month and it’s cost me less than £20 boy I would have gladly played ten times that amount I was spending lots more on cigarettes hope you try it good luck let me know how you go on.😛💪 ttfn

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