Vitamin D3 supplements and ms....
Interesting...
Coimbra Protocol: Vitamin D3 supplements... - My MSAA Community
Coimbra Protocol
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27 Replies
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I'm not sure if you had intended to post a link about something you read? If so it didnt get through. I take daily D3 of 2000iu which is 250%
in reply to Allen5280
I just read a book about this today!
Interesting. I will ask my Neurologist about this too.
Allen5280 in reply to
I am looking at a website of a doctor close to me that practices the protocol
in reply to Allen5280
Cool 😎. I haven’t got that far yet. Let me know what you find out. I did find a Facebook page and there are supposed to be you tube testimonials too.
It was an interesting read.
Birdymom3 in reply to
I have been taking a good multi vitamin ,vitamin D3 5000 units amongst others with my neurologist's advice since 2002 for me they have made a big difference.
hsctstopsms.com/simple-over...
It is Very Interesting, interesting enough for a conversation with my neuro!
Need to take K2-MK7 to back up the D3. Remember, one treats to target.
Get yr levels checked, then will know what yr target should be : between 60 to 80 ng/mL is now considered the correct levels. Since 2014, levels have been titrated upwards. Again, depending on yr numbers, if low, supplement at 6000 per day. If medium, 4000 per day, if good, 1000 - 2000 per day, in summer. Remember, that in winter, your levels will be reduced, so keep numbers up. Get levels checked on a regular basis.
Also, Magnesium, Mag. Threonate, which is the one that helps the brain.
It is quite likely that your neuro will know nothing of these supplements...!! One can 'hope', and of course, there is nothing like educating them !
There is a wealth of information available on the internet from experts various. Dr David Holick is one of the doyens on D3.
Vit-D3 : Ivor Cummins addresses the topic of D3. This lecture is dd 2014, and there have been a few changes since. Adequate levels to target are now considered to be from 60 - 80 ng/mL (80 - 120 nmol/L. Cummins addresses the importance of D3 in MS -
youtube.com/watch?v=v3pK0dc...
Doyen of the Vit-D3 subject : Dr Michael Holick -
I don’t think there are any MDs in the states that do the Coimbra protocol.
Well as we discussed in a prior post I take vit d 50,000 and I also take b12 1000.
Do you do the prescription for the 50000 iu if you don't talk to your doctor about that high of a dose can be bad for you unless you need it, my husband had to take it twice a week due to serious health problems.
Recent research questions too much vit d —> inc calcium and worse MS 🤷♀️
My fist level was 40 and I took 5,000 in the summer and 10,000 in the winter as recommended by OMS. My next level was 42 🙄 I was on the diet also, which is low in calcium. Anyway, I then did the one off dosing of 150,000iu paired with additional k2, 3 times. I continued the 10,000iu during pregnancy, and went to 50,000iu weekly after delivery. The next lab was 72/normal calcium. Disclaimer: No idea what my level is now, I have not taken any supplements since last Feb, I use a UVB light, I don’t do that diet, and don’t take additional k2. Just saying I took a lot for a long time and was fine, baby was fine, MDs were fine, labs were fine, yaddayadda.
GL!
I take 5k D3 daily, levels @60
Just reporting the recent research about too much and possible inc calcium and worse MS 🤷♀️
Med research and recommendations change day to day 😜
As I have been reading alot...pros and cons. I think it is a discussion I want to have with my Neurologist and have my Vitamin level checked.
Thank you all for your input.
It sounds as if Vitamin D is important for many body functions.
kdali in reply to
It is, and it’s not the only hormone or chemical (like ubiquinone) influenced by our exposure the sun. There’s an app called D-minder that will tell you what times in your location you can make vitamin D from the sun, if any, and it can track your sun exposure or supplement intake. Worth the $3!
More information on Coimbra Protocol please. Maybe even a cut-and-paste.
in reply to sashaming1
I read a book 📖 yesterday called
“Stop multiple sclerosis & autoimmune disease “
By Jennifer Butler
Birdymom3 in reply to
Talk to your doctor before you do anything .
Redhead4377 - just be very careful about getting caught up in a lot of the stuff you will find which sounds good but is actually quite dodgy. The Coimbra protocol MUST be done under very strict medical supervision, and is not accepted by mainstream medicine as being an appropriate "treatment" for MS - many of the claims made are anecdotal and not proven. A lot of people will attribute their improvements to following some special "MS Diet" or "lifestyle protocol" but many of those people are ignorant that their improvements are more likely to be due to the normal remission processes and body healing that occurs with MS - that's why the most common form of MS is called "Relapsing/Remitting" - because it comes and goes.
I very strongly recommend that you do the Understanding MS online course and learn the facts about MS. Quite a few members of this forum have done the course, and highly recommned it. Based on student feedback it was voted one of the top courses in the world for 2019. The next six-week course starts on 16th March 2020.
Once you have a basic knowledge of the facts about MS you will then be in a better position to make an informed decision about a lot of the stuff that you find online, and will be much less likely to be taken for a ride by some charlatan peddling alternative BS which will not actually give you any benefits except perhaps a feeling that you are "doing something" which gives you a sense of control over your MS - albeit a false and misleading sense of control.
Frances,
Thank you and I agree with you!
It is good to be informed but not influenced by quick fixes or miracle cures.....
I have been reading alot lately and do have a list of questions for my first appointment with the Neurologist. I have added vitamin d testing to my list.
I do appreciate everyone's input.
Thank you.
