My neurologist is putting me on Aubagio, Hopefully starting on it soon. Are there many support groups to help deal with the mental toll it’s taking already? And does it get better or is this going to be the new normal?
So I’m new to the MS world, and complete... - My MSAA Community
So I’m new to the MS world, and completely overwhelmed. I was diagnosed on feb 14th happy Valentine’s Day to me right?
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Sonnydog76
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Hello Sonnydog76, I don’t know what you meant but as time goes along you know what your body can and cannot do. You know your limitations. Everyone shows this disease differently so the normal is unique to that person. I can just say to take your medications, eat right, and to take care of your body. Listen to your body and continue receiving and accepting support because it helps. Good luck. Royjr
Hi Sonnydog76,
I am new to all this too and am awaiting my first appointment with a neurologist. I don’t have any real answers for you but I have hope and try to stay positive.
Others on this site have been helpful with knowledge, encouragement and humor.
Best wishes and prayers
Welcome! I’m not sure about mental heath support groups but you can search healthunlocked.
Welcome to the group. If you go The the national MS Society website there is a link on there that will search for in person support or connection groups that are in your area. Online support groups you can probably do an internet search for. Some are good, some not so great, and then there is this group. This group is awesome!!
Good morning Sonnydog76!
I can only speak of my experiences. At first I was completely overwhelmed w/what was taking place within my body and life. Today...three years later I’ve adjusted to change. I think for me the key moment was when I truly accepted where I was....my new normal. The acceptance didn’t happen overnight, but when it did I found the peace I was searching for so hard.
There are physical support groups in most towns and cities. We didn’t have one close by so we started one and surprisingly 8 people showed up. We had no agenda other than to help each other feel better walking out than we felt walking in. We’ve been meeting for almost two years now. We have 15 members. Also there are tons of support right here as well as endless others. I especially like this one because MSAA backs it.
I hope I didn’t ramble too much, but w/my background I’ve found that helping others helps me. Keep coming back. Keep asking questions. Keep sharing your heart. God bless you my friend.
Welcome to our crazy group of MSers. Great place to vent and find out information from those who care👍 I have been on seven different DMTS over 25 years and still upright moving and driving. I have been on Aubiago for the last two years with my last two mri’s stable and no new lesions 🙏. Hang in there we are like snowflakes very different in many ways but all connected by MS. Feel free to jump in any time and there are No stupid questions here. We are not doctors here but we do live and breath ms and are strong together 👍🙏😉😊 Ken 🐾🐾
We all understand what you're going through, for we've all been there. None of our circumstances is exactly the same, but we know what it's like to get the diagnosis and then feel as though we are drinking from a fire hose when trying to take in so much information and deal with the emotions.
This group of wonderful people were a godsend to me when I was diagnosed, and I hope we will be that for you, too. We come here for information, support, and place to vent safely. We even laugh a lot together.
It's helpful to write down all of your questions for your doctor(s), and keep a log of your symptoms to take to your doctor's office.
Check into all that MyMSAA has to offer with support and information. Hang in there. We're pulling for you and are here when you need us.
Welcome Sonnydog76,
There are alot of people on here with good information. Ask questions, vent, or if need of support. I'm new to this group also. I think it's a great group of people.
we are all different just like MS is for everyone but you can always ask questions if you don't understand something that someone is talking about or that you have read or heard about ..no one will judge you for we have all been in your position of just being told you have MS ...no one is a doctor so just have to remember that and if something sounds like something you would like to try talk to your doctor about it ....we tell jokes and put up funnies we have fun and do cry or have melt downs on here or have a big melt down on here and no one judges ...we are all warriors with the same problem and that is having MS and it is different for all ...so ask questions or give what has worked for you or not ...just enjoy life for you can still live it and yes things maybe have changed or not but we still are living it ...take care and get some rest for it is good for healing ...love and much happiness with all of us ...it can still be lots of fun....we are a funny scary bunch of people but we don't bite either just trying to make you at ease hope it helps...
Welcome Sonnydog76 . I was diagnosed April 1st (April fools day) what a joke huh. But that will be 3 years the 1st. I was blind sided and felt like I’d been punched in the gut for awhile but then I finally stood up and picked up my self up out of my recliner and moved on.
I’m not quite moving as well as I did then but a motto of ours is never give in keep moving. You have come to the best site and the greatest most compassionate loving understanding knowledgeable bunch of people I’ve ever known. They picked me up so many times I could never begin to count them. So come on in and make yourself comfortable and introduce yourself and meet some incredible people and we all have that bond of going thru the same what we call the MSMonster. If you need prayer you have certainly come to the right place because you will find we have some of the most serious prayer warriors you can find.
Again welcome and God bless.
Donnie
Hello,
I am sorry you are here but glad you found this great support groupm i was diagnosed july 2019. Had anxiety racing heart beat constantly crying etc. This group really helped me. It has gotten better and i felt better after joining this group and continuing on with work and my life as it was pre diagnosis. One day at a time. Blessings
I just want to take a minute to thank everyone for the warm welcome. It gives me great comfort knowing I’m not the only one going through this. While I wish none of us would have to deal with MS, it’s a relief knowing there’s someplace to go where everyone understands what it’s like.
Great reply! We are glad to have you join us, I'm sorry I didn't see you sooner. We almost all of us are in a stage of ms. There are a few care givers here too. They add a wonderful perspective.. As I always say to new members, we are glad to have you join us. Feel free to ask questions, answer others questions. Make a post about something good or to just let us know how you are.
I am on Aubagio. For me, I love it. I had taken 2 other meds and they gave me bad side effects.
It's hard for anyone else to answer your adjustment question. We are all so different with different degrees of disability and mindset. My experience is that once Aubagio was started and I didn't have to deal with side effects things mostly settled down. I've had a few issues but in the scheme of things they were fairly minor. Roll with the punches, you know!
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