Post 599 Go online do your research ... - My MSAA Community

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Post 599 Go online do your research 13 Feb 2020

RoyceNewton profile image
2 Replies

Open a book , “YOU” are online do some research. Call msAA or if really desperate the NmsS. I bet “YOU” find your fears, squashed within 5 minutes. What “YOU” are scared about is quite possibly nothing, but very normal. Do some research, ask some questions and have your fears put to rest. Make yourself knowledgeable about your illness. About your medicines, and your body. What should “YOUJ” expect to happen. How fast and what are the side effects. Perhaps even what will it do and how should I know when it is or is not working. None of these medicines will cure our condition. Only one that I know of may kill us. Why would “YOU” ever look into that tablet, it is not as though it is 100% effective There is no reason that “YOU” do not know this.

We most certainly have a very big disease, with a lot of variables but they get reduced a lot when “YOU” have an idea what to don’t and what is happening too “YOU”..

Find a disease Modifying Therapy (DMT) that “YOU” will take. Get it, and start taking it. Religiously like your life depends upon it. It does not, but this is a serious illness so no excuses. NO, I am okay now I will just wait and see what happens. What will happen is that “YOU” will get sicker, just look back 20+ years. Those ladies and men had nothing and they got sicker. The medicine today will allow us to get sicker at a slower rate. Perhaps “YOU” can still be walking around in your 50’s as opposed to being dependent on mobility aids.

This is up to “YOU”, the decision is yours. At 3am alone in bed there is nobody there who can ease any pain or uncertainties. Various drugs do not ease your anguish or slow it down. I have tried overdosing several times, all that happens is “YOU” cause yourself worry, which is not good. Or “YOU cause stress for your loved ones. This condition will not be cured by anything,BUT it can be slowed. Try not to fret that “YOU” do not have all the answers right away. This will take time. I am sure that after 20+ years I do not have all the answers. She who must be obeyed does not have them all after 23+ years. One answer we do have is a DMT taken per instructions, willo slow down our disease progression, and the is a very good thing.

Royce (the ms writer)

this disease requires determination and the will not to get worse, faster than necessary.

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RoyceNewton profile image
RoyceNewton
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2 Replies
twooldcrows profile image
twooldcrows

thank you for all of this wisdom hoping others realize the time you have taken to give us this wisdom ...take care and stay safe and really enjoy your life ...love and much happiness with all of your family....

RoyceNewton profile image
RoyceNewton in reply to twooldcrows

Than you, the aim is to help somebody else, so that they are not as lost and despondent as I was

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