Vertigo! : MSAA says Vertigo, or the... - My MSAA Community

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Vertigo!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
31 Replies

MSAA says Vertigo, or the sensation of “spinning,” may occur as the result of lesions in the brain areas that coordinate balance.

Yes I get it! No I don't like! I like even worse in the shower! I've had it bad enough that it made me sick! Dramamine helps ME. Doesn't mean it'll help you, but it might! I'm not a Dr!

Do you get vertigo? How bad was it? Do you take anything for it? Read more here about it!

mymsaa.org/ms-information/s...

And special thanks to Positive Living!positivelivingwithms.com

Jes🌠

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Jesmcd2
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31 Replies
carolek572 profile image
carolek572CommunityAmbassador

I have had vertigo so bad that yes, I did get sick. I was diagnosed with BPPV and with a few exercises with a PT, this has all but disappeared. While I had it, it was horrible :-D

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tocarolek572

I just took the Dramamine and it went away. I forgot to tell my neuro.🙁🤗💕🌠

carolek572 profile image
carolek572CommunityAmbassador in reply toJesmcd2

That's a good idea! I will try Dramamine next time :-D

Doubled51 profile image
Doubled51

Yes I have it and yes it does affect my balance. With already balance problems then add on vertigo equals falling on your butt many times.🤪😜

Donnie

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toDoubled51

Tell.... Your.... Neuro.... Doubled51 ... 🤣🤣🤗💕🌠

Doubled51 profile image
Doubled51 in reply toJesmcd2

He says it’s part of my ms a long with balance problems.🥺🥺

greaterexp profile image
greaterexp

I've had BPPV in the past, which is awful. The vertigo from MS is rarely positional for me. I can be just sitting and minding my own business and wham! The room spins, making me nauseous. Dramamine has helped with the nausea. I just wish I could point to a trigger, so I'd stop doing whatever it is that brings it on!

Iona60 profile image
Iona60 in reply togreaterexp

Sometimes I get vertigo like you mentioned greaterexp if I'm hot, especially when I'm in bed. If I cool off, it resolves itself.

twooldcrows profile image
twooldcrows

yes i get it off and on not as much as i use to...have learned to not move my head to fast to look at something or if i take a too hot of a shower that is hard i love a good hot shower but not now with this MS thing my monster will make me off balance bad in the shower and even worse when i get out that is my worse with it but that is me ...yes it feels like you have been on a carnival ride ...want to get sick feels really yuck ...have to take care when it hits...

bxrmom profile image
bxrmom

I have vertigo all the time. Sometimes I have a really bad day and it is really bad and the room just spinds. I have Dramamine in the past and it made it worse :( Luckily I don't have bad days like that as I used to. I have been somewhat able to 'manage' with what I have to a degree.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tobxrmom

What does your neuro say about it bxrmom ? 🤔🤗💕🌠

bxrmom profile image
bxrmom in reply toJesmcd2

None of them have really said anything about it. It seems to be just 'a part of my MS'. I am going to bring it up at my appt on Feb 13th though as it has been trying to creep in more lately.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tobxrmom

There are different meds for it Hun! Take a list with and ask about them, it won't hurt. They are listed on the pg I posted! 😊🤗💕🌠

bxrmom profile image
bxrmom in reply toJesmcd2

Thanks, I just printed the list Jesmcd2

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tobxrmom

mymsaa.org/ms-information/s...

bxrmom profile image
bxrmom in reply toJesmcd2

Thanks! I just printed it :)

Peruzzot profile image
Peruzzot

I get vertigo though have never been diagnosed with an actual cause other than what got me started on the MS diagnosis journey. The nurse practitioner noted that I had a severe infection in both ears but that didn't explain my hand coordination issues. I haven't gotten nauseous or sick because of the vertigo yet. But it likes to sneak up on me sometimes when driving so I have to either pull off to the side if I can or just stop on the road when I can't and tick off everyone behind me.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toPeruzzot

Like your style Peruzzot !🤣🤗💕🌠

Morllyn profile image
Morllyn

I did, years ago. It lasted for a few hours but I haven’t had it since.

hairbrain4 profile image
hairbrain4

The only time I ever have anything like vertigo is when I look up or tilt my head backward then move my head back to the normal position. The room starts spinning for a few seconds, but then it's gone. It's a weird sensation.

bxrmom profile image
bxrmom in reply tohairbrain4

I get that sensation when I look up too! Though lately, I get it while I'm just standing somewhere or while I'm sitting :(

rrw5620 profile image
rrw5620

I have bad balance/dizziness and Vertigo due to ear problems combined MS. Trick - My Ear Doctor told me that when the Vertigo goes off, look at a item and nothing else and the Vertigo will subside within a few minutes. The trick on the Vertigo also helps me on Balance when Balance is really bad. Hang in there as it will be better.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply torrw5620

That's what I have to do rrw5620 focus on one thing until it passes! 🤗💕🌠

bxrmom profile image
bxrmom in reply torrw5620

I'm going to try that the next time mine kicks in. Thanks for sharing that.

janetb1968 profile image
janetb1968

I also get it really not impressed with it! It does my head in! 🙄🙄🙄🙄🙄

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tojanetb1968

🤣🤣🤗💕🌠

janetb1968 profile image
janetb1968

Xxxxx ❤️❤️❤️💞💞💞😎😎😎😁😁😁😁

Psycho13 profile image
Psycho13

Oh yes!!!

Mjcarbo profile image
Mjcarbo

I’ve had vertigo and dizziness fairly often. Dramamine and Antivert help somewhat. Haven’t tried Benadryl yet.

CrazyCatWom profile image
CrazyCatWom

Yeah, I've had vertigo . . . . but in only one eye! Lasted for about three months. As long as I wor a patch over my right eye, I was ok. But without that patch. I was heaving my guts up.That was about ten years ago, now, and was one of those things (along with my hands becoming vibrating flippers) I knew was my MS getting worse.

cookee profile image
cookee

I have had spinning with nausea for over a year. My environment doesn’t spin, I spin. It is not BPPV. I went through PT and therapist is sure my vertigo is not positional. I have noticed that it comes on strong in brightly lit places. Also always happens in our church that uses halogen bulbs. It is miserable and lasts for hours. I recently purchased blue blocker glasses which give a little relief.

I will try focusing on a single item next time vertigo strikes. Hope it works!

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