Post 555 Wow I made it 28 Oct 2019 - My MSAA Community

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Post 555 Wow I made it 28 Oct 2019

RoyceNewton profile image
4 Replies

Yes, there are 555 posts from Royce, 20 or so short comments and all of this in a few years. I joined in 2016, I think, lost "YOU" for a while and found "YOU" again. Funny how the world turns. I hope over all these posts that I have helped one or two of "YOU", come to terms with, ease your fears of our illness. If I have not I am sorry, I will try to find the words to make it easier for "YOU". I am determined to say to "YOU" the words needed to hear all those years ago. To give "YOU" the strength and wisdom that I eventually received. That guidance was always there, I merely took a while to accept and embrace it.

RRms is a big disease. It will take a little while to come to terms and start to understand it. This is a great group of people (family), who will help if "YOU" ask. "YOU" are not alone, it is not all doom and gloom. Yes, we all have a chronic, incurable, progressive condition, but we are not guaranteed crippling disability, pain and suffering. Sadly this does not go away. There is no bright sunny end to Relapsing-Remitting ms (RRms) we have to move forward, past the darkest days, towards simply gloomy days. Today and for many years to come, nothing can take away the darkness of RRms, but "YOU" have come to a great place for a little support and brightness.

Two assets I have found and like are YOUTUBE Dr Aaron Boster MD and an article from Everyday Health, 20 tips about building your resilience. Build your resilience, RRms is a life long journey. "YOU" can do it, but a few tools in your toolbelt never hurt, anybody. Read strength, believe in yourself. Live a very long, very good life with your RRms, and be very careful of what "YOU" listen to.

Royce(the ms writer)

I am sorry you joined this family, but nevertheless welcome

By the way my strength comes from a close friend who was toasted in a nursing accident long ago. Her neck and face are the back of her thigh now. If she can, I can as well, and so can YOU.

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RoyceNewton profile image
RoyceNewton
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4 Replies
twooldcrows profile image
twooldcrows

yes i have learned so many things by talking to people that actually have this not just by a bunch of books and articles that do help but talking with some one that has it helps so much more ...yes we didn't ask for it but we just make the most of it ...great life for what we make it and if it can't be done the same as before we just look for another way of doing it...ask anyone for help just like Royce has said and most on here will help if they can and if not probably know some one or where to find the answers ....have a great day and for many more days filled with fun and funny things to laugh at it sure helps me ...

RoyceNewton profile image
RoyceNewton in reply to twooldcrows

planning the next adventure, I am thinking Alaska cruise, she is thinking Sweden makes me wonder how for both, but I will figure it out, rrms willing

twooldcrows profile image
twooldcrows in reply to RoyceNewton

check into the MS cruises ...i haven't gone but there is lots of them that have ...have fun and enjoy.....

RoyceNewton profile image
RoyceNewton in reply to twooldcrows

I will mention it

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